dania wrote:Dr Sclafani I have a stent that was inserted last June. It has now become pinched and bent at one end. Dr Arata was unable to get past the bend. It is causing me considerable pain. Meds do not help. What can be done?Can it be removed?
CCSVIhusband wrote:drsclafani wrote:The external jugular drains the face and scalp. I do not study these veins and i do not think these veins are the first line of action, perhaps they take on a greater potential when the internal jugular cannot be opened or has clotted off.WeWillBeatMS wrote:Dr. Sclafani,
Are the external jugular veins also tested for CCSVI? I know that they have not proven to be a regular problem but what about for the people like myself who have lost hearing in one ear? And at times even my good ear rings and pops and feels plugged like my bad one does all of the time.
Sorry to bring this topic up again ... but a few questions:
Do the IJVs drain at all when upright? Or are they completely closed off?
Do the External JVs close off too when upright?
Just curious ...
tiredloulou wrote:my follow up was to take 1 aspirin daily...........
no mention or script of plavix or?
since the only follow up is my family dr.
should I be requesting to be placed on plavix?
due to stent
linsand wrote:Hello Dr Sclafani, can you help answer some questions?
I know as a person with ccsvi/ms that the IJV"S are open (hopefully) when I'm lying flat (supine)and the vertebral venous system takes over when I'm standing.
So..... 1/3 of the day we may lie flat and be sleeping and the IJV's drain.
2/3 of the day we may be upright and the vertebral veins drain.
Q, Should the vertebral venous system be investigated then somehow, ie, with our neck above heart level?
Sorry but I have been reading some research from the site below
☛Janneke Gisolf ,2004.
This thesis has been prepared in the Cardiovascular Research Institute Amsterdam,
Chapter 2. Cerebral venous outflow pathway is posture dependent pg 13
Research Group on Physiology and Pathophysiology of the Circulation, at the department
of Physiology. The project was financed by Space Research Organization Netherlands
1. Does Coumidin have to be for 6 months?
2. Do I have to avoid certain neck movements?
3. Can these stents break?
And at the risk of sounding incredibly corny I'm going to say that you didn't just open a vein for me, Dr. S, you opened a door for me. If I don't get anything else, I now have hope...and possibilities. Everyone needs that. You truly are a "salvatore" ("savior" in Italian)
Mille grazie! Thank you so much!
WeWillBeatMS wrote:Dr Sclafani,
#1)So in addition to the backflow of blood going back into the brain, is there blood that also leaks out of the veins? Maybe I misunderstood.
Also in the interview you say that you are skeptical, and although I can't hear the interviewer's question, I believe you were saying that you were skeptical about treating CCSVI. #2)Do you still feel skeptical today?
#3)Lastly, how many patients had you treated at the time of that interview? and how many today?
OK so the last question was kind of a two for one.
Johnnymac wrote:Hi Dr S, I've been looking over some of the pictures from Courtney's procedures and I'm not sure exactly what I'm looking at. Figured this would be an appropriate place for a little training.
Since Courtney's disability is primarily on her right side, I was looking closest at images of her rijv and her azygos, and was wondering if you could clarify what I'm looking at.
Thanks in advance!
Am I seeing collaterals in these two images? Have you noticed if collateral veins generally indicate any particular types of issues with valves or venous abnormalities?
Is the area pointed out a valvular stenosis? I'm really unsure how to interpret images of the azygos.
[/QUOTE]I wasn't sure what this image was, could you give a quick tip on what we're looking at here?
Thekla wrote:You mention a 'persistent immobile valve' in the azygous that you treated by angioplasty. Was that just not identified in her previous procedures?
Are you finding the sigmoid sinus cropping up more now? Somehow, the idea of a wire there really creeps me out.
It seems like there is so much to learn with this. I really hate having to be at the beginning of the learning process---I wonder what we'll know in another year or two.
JOIN THE REST OF US. tHESE PROBLEMS ARE QUITE DIFFICULT TO DETECT ON VENOGRAPHY BECAUSE OF ARTEFACTS CAUSED BY THE BEATING HEART AND RESPIRATORY MOTION. IF COURTNEY HAD AZYGOUS PROBLEMS (MY HEAD CANNOT REMEMBER SO MANY FACTS ON ALL THE PATIENTS THEN THEY WOULD HAVE LIKELY BEEN DETECTED BY IVUS
Dr. Sclafani, I was wondering as well how my immobile valve in the Azygous could have been missed in Egypt ? Or do you mean by "persistent" that although it was recognised & ballooned, they just didn't "see" that it remained the same ?
Thekla, knowing that there was a wire "up there" in my head was beyond creepy Somehow the idea of a catheter going through my heart was totally ok, in my head, not so much... Go figure !
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