drsclafani wrote: tiltawhirl wrote:
I went into the treatment as an atheist and skeptic. My friends and family rallied around me to look into this procedure since there was nothing left in the treatment box that was relevent; which led me here. I was certainly not looking for the kind of outcome I got, but just the reduction of some of my symptoms in the very best outcome situation.
Dr S, how do you explain my damned near miraculous results(and others I have seen on the web) without attributing them to the flying spaghetti monster in the sky? What other processes are at work that we don't know about in regards to proper flow vs symptom changes?
As an aside, I will be very interested in seeing if there are any new lesions in my upcoming MRI in the fall.
Edited to add that I am aware my results are not typical, but I am curious none-the-less
what i am going to say is not science, it is logical or illogical, depending upon which answer suits your fancy.
it is startling to see the kind of result that you achieved after less than perfect angioplasty. The fact that this improvement in symptoms was achieved so quickly, suggests very strongly that venoplasty is not affecting your multiple sclerosis, a chronic demyelinating disease of the white matter of brain and spinal cord. I cannot comprehend how improving venous outflow of scarred and demyelinated neurons could return your balance, improve your cognition, alter your foot drop, and return sensory reception and integration of dead neurons in 24 hours. Can anyone?
I am heartened by your outstanding improvement, especially in the current hostile and very discouraging environment. I want your result to continue beyond two weeks. I must temper your enthusiasm in that we must seek durability of those improvements and remain vigilant in maintaining the correction of venous obstructions that you had.
but for the moment, tilt, smell the roses.
drsclafani wrote:Either you have had a phenomenal placebo effect and you really dont have neurological deficits or ccsvi has its own symptoms unrelated to MS or symptoms that are confused as MS, or symptoms that overlap with MS. It is the reason i assert that i do not treat multiple sclerosis and that by correcting venous outflow derangements i in some way reduce symptoms associated with ccsvi.
I would be willing to admit placebo effect or some sort of somatoform disorder very willingly, if:
1. I didn't meet the McDonald criteria for MS diagnosis clinically by having lesions demonstrated seperated by both time and space
2. I hadn't played the drums for 25 years and have an intimate knowledge of coordination; then watching that coordination slowly erode before my eyes
3. Both bowel and Bladder incontinence; Who craps their pants at the office for fun?
4. The ultimate optimist my entire life suddenly so depressed I was ready to check out permanently if something didn't change(no financial, marital, or family stresses to speak of or any reason to be depressed.)
5. I hadn't had 6 years of of using a cane and renting a wheelchair for longer distances.
6. I didn't have Bone-crushing fatigue
7. I didn't have incredible heat intolerance(My whole life I always said I should have been born in the Amazon basin as my favorite weather was always 95F and 80% humidity)
Otherwise, I look forward to more research being conducted by pioneers such as yourself to find out the answers to these questions to benefit others.
I am smelling the roses, and cautiously optimistic for the future.
Thanks Dr S.