Zeureka wrote:Dr Sclafani,
When had heard of Kuwait action and results, thought this it! I was hoping this would open up the doors! Thanks so much for reporting to us about your views on the protocols (could not have been more positive!) and efforts for sharing experiences with Kuwait and other CCSVI researchers!
In case you would have any additional comments on the following statements?
confirms the association between ms and ccsvi.....surprise!
CTV News Article 9 April: >>CTV News has confirmed that Kuwait's minister of health has given interventional radiologists in the country the go-ahead to use the state-financed medical system to begin treating patients who have blocked veins and abnormal blood flow in their necks...
The procedure will not be performed to treat MS per se but to treat only "improper blood flow" in the veins. So we say this is a vascular problem in the neck. Patients, when you dilate the veins, they feel better. We don't have to talk about MS or the link to MS," said Sinan.<<
I think that this is a bit disingenuous. I have used the argument, but it doesnt stand up to scrutiny by serious concerned doctors who are skeptical. If nearly 100% of patients with ccsvi have ms, then there is a link to ms.
To say that we are not treating ms is ok, but to say we do not need to talk about ms WILL NOT FLY. What reason would one get tested for ccsvi if it were not for ms.
please do not shoot this messenger. This is something we have to face.
>>No stents were used in the procedures, a practice some doctors around the world have tried and one that Dr. Zamboni does not endorse.<<
=> This non-MS approach and general anti-stent policy does now not seem to reflect the protocols? Stating:
>>AIM & OBJECTIVE:
In Kuwait the MS patient is increasing and it is estimated about 3000 – 6000 patients. This program started in March. 2010, it is multidisciplinary approach, vascular diagnostic lab. doctor, vascular surgeon, and vascular intervention radiology, radiologist and neurologist.
Our objective to diagnose MS patient with Chronic cerebrospinal venous insufficiency (CCSVI) and to evaluate them with Duplex scanning and magnetic resonance venography and to evaluate clinical and or radiological improvement of these cases after treating them with angioplasty with or without stent of the diseased affected part of the internal jugular vein,
they are saying that they do not have intent to treat with stents, if i can interpret. they are not going to tie themselves up by saying never. it might be necessary for patient care of a patient. for the group there is no intention to treat with stents.
some clinical improvements great!
GREAT INDEED what is stated in addition to the improvements list Johnnybaby248 reported already from the link: http://www.ccsvikuwait.com/Details.aspx?d=4
The angiography may stop MS progression, BUT it cannot
fix all symptoms, especially if axons have already been lost.
However, some symptom improvements (anecdotally reported) are
immediate, such as increased visual acuity and decreased (or
eliminated) brain fog, tinnitus, and fatigue.<<
you see the slip of the tongue.... "may stop MS progression" we cannot have it both ways.
i want to say, that it is too early to determine whether it can fix all symptoms.......too early to say this