This Is MS Multiple Sclerosis Community: Knowledge & Support

I am a person willing to take a high level of risk to avoid further disability, but comparing PML to an insicion infection is hardly realistic. The risk of PML so far is estimated at 1 in 1,000, with not all cases fatal. The risk of death from angioplasty (in arteries - don't know for veins) is higher than that.

It is important to realize that neither Tysabri nor Liberation surgery, or any other medical treatment, including aspirin is risk free. The risks from libertation surgery cannot possibly be completely known at this point. I would remind you that a year into Tysabri as a monotherapy there were NO cases of PML. Liberation surgery has not been around long enough to know what the long term risks might be.

That said, I am waiting for my date to have it (and I took Tysabri, too).

re: Dr. Bonn being shut down ...

Is it possibly because all these people screamed his name from the rooftop over the internet? I've seen his name on SEVERAL websites including this one and Facebook. If people haven't caught on that there are those against CCSVI out there who would call up a hospital and stop doctors from doing this ... you're naive. I think we've seen that at this point re: Dr. Dake, Dr. Sclafani, Dr. Bonn ...

We need to pass these names along through back-channels ... secretly. To help each other ...

A doctor who isn't doing the CCSVI procedure is just as good as a doctor who is against the CCSVI procedure. They're only as good for the patients when they're working.

We're trying to warn you guys ... maybe the next doctor found will be kept quiet and we'll go from there ...

I'm very sad again tonight through all the ups and downs of this ... this is another down.

Dr. Sclafani ... give us some good news and tell us you'll be back to plumbing soon???

there has never been ANY reason to suggest that improved blood flow would ever have long term negative effects.

Well said.

And cardiologists don't consider angioplasty dangerous so why should I? To be honest, I'd be happier with far shorter odds.

L, have you been liberated already? I'm just astonished at the lengths that have been taken to get in the way of an "easy fix" that makes such drastic improvements!

It just keeps getting better and better more results out of Kuwait
http://www.ccsvikuwait.com/Details.aspx?d=4

Dr. S. any words of in encouragement

Dr,
Suppose in a couple of months or years, the stent is a problem. It's damaged or it has to be removed for reson xyz. Can it be removed?

Dear Dr. S:
Is there any way to do an MRV at your office/location? The closest place that I can do an MRV is an 8 hour drive. Then, I would have to be driven another 8 hours to your location on another day.

With thanks,
Sofia

Dear Dr. S:
Is there any way to do an MRV at your office/location? The closest place that I can do an MRV is an 8 hour drive. Then, I would have to be driven another 8 hours to your location on another day.

With thanks,
Sofia

Dr. Sclafani,

In 2002 I gave birth to triplets. The kids did great. I started bleeding to death. Before they could get back with the blood they began pumping me full of saline to give my heart something to pump. After several units of saline, they pumped 3 units of blood into me of which two bled out before they got the bleeding to stop. The third pint was a bit of replenishment. My doctors told me I was still "a quart or two low" as a NASCAR comparison I'm sure. I then developed bell's palsy from the swelling that occurred following all this trauma to my body.

It was after this experience that I (looking back) can see symptoms of MS began to appear. I was officially diagnosed in 2006.

Could venous "issues" develop from a trauma like this? Or am I trying to make an association where none exists?

Thanks,
Marcia

I was tested for CCSVI by Angela Hume at the Barrie Clinic under the direction of Dr. Sandy MacDonald on April 15.

The test took about 20 minutes and followed Zamboni protocol to a tee.

The results were:

Right:
The cerebral venous outflow appears patent with no evidence of venous thrombosis. Venous insufficiency was eveident with reflux in the internal jugular vein at 0 and 90 degrees. B mode abnormality noted.

Left:
The cerebral venous outflow appears patent with no evidence of venous thrombosis. Venous insufficiency was evident with reflux in the internal jugular vein at 0 and 90 degrees. The cross sectional area of the internal jugular vein is larger than the cross sectional area at 0 degrees resulting in a negative delta (positive result). B mode abnormality noted.

I submitted these to this thread since I am on Dr. Sclafini's waiting list and was hoping he could comment on the results. This negative delta is what i need some meaning on, since i don't understand it. I tried calling Angela who did the testing but she is extremely busy currently.

Any help here would be appreciated,

Sean McNeil

Specifically,

Sean,
the jugular vein cross sectional area (CSA) should be larger when you are laying down (0 degrees) and smaller when you are sitting up (90 degrees)
If the difference=delta is negative or zero then this is one of Dr. Zamboni criteria and they call it positive results
Hope this makes it clear for you.

Sadly legal shut down Dr Bonn today. I have a confirmed email from Dr Bonn.
what I'd liketo understand is how can a procedure be shut down, like angioplasty when a patient is paying out of pocket, making it an elective surgical procedure?

Feels like discrimination to me! I might understand this more if the actual procedure were in some way new, but it really isn't. And it isn't as if anyone in the MS community has had anything horribly adverse happen from any of the angio procedures! What can we as patients do?