simone wrote:drsclafani wrote:prairiegirl wrote:@Karenems WOW! Dr. S, are you seeing some patients with fast and dramatic improvements like this?
i have seen even more dramatic improvementws. but some of the most dramatic do not last for very long. is it restenosis? , i supsect it is, although i wonder what really is the symptom change3 very often
but the improvements are sometimes frighteningly dramatic. so much that it feels like i could not have caused that to happen
what are your thoughts on what may be the cause? Have you gone back in to look? How can the vascular flow have such effects?
If it is " myelin damage", as i thought it is seen by neuros, how could there be any such response and if there is restenosis then reverting back of symptoms doesn't that show the direct relationship of ccsvi to symptoms? rather than calling those symptoms MS. the plaques did not repair that fast. what am i missing here? quite a placebo.... perhaps touched by an angel......
Oh, so much appreciation!
sometimes i just need to decompress. if you think this waiting is getting to you, you should see me. I get up, i get down, i get angry, i get pleading, i hate the irb, i esteem the work they do
i just want to get going too
how can i explain these abrupt changes.? we can all guess cant we. perhaps myelin transmission needs certain amount of blood flow,oxygen pressure reduction, cleansing for improved function. Your guess is as good as mine at this point. Like i keep saying we are just beginning an age of discovery. so much to learn, it will take the rest of my useful career, and i am thankful for that.
clearly such improvements in the moment, sometimes even before the procedure is completed will lead to doubts, especially by those who don't want to have been this wrong.