Here's my comments.
Dear Julia Brownell,
The facts you presented in your article were accurate enough and I felt the over all content of your report was not slanted in either direction, pro or con CCSVI.
What I take issue with was your headline, your caption, was not accurate. I realize that journalist are taught to create captions that “grab” the reader, but the headline sets the “tone” and readers were set up to believe there was something more to the delaying of the procedures than just simply the delay until the proper clinical trials are in place.
A more appropriate and neutral headline could have been, “Prof. delays performing promising treatment on MS patients with CCSVI until a clinical trial is in place”
The inaccuracies in your headline were twofold as follows.
1) “Prof. and fears” do not belong together in ANY sentence regarding Prof. Dake.
2) “Halts MS Trials” is technically incorrect, as at the time, there was not a trial in progress.
Multiple Sclerosis patients and advocates are determined to find answers to MS. There are billions of dollars available for the testing of pharmaceutical treatments and pitifully little funding left for non- pharmaceutical options. Negative reporting of this promising avenue of research is unconscionable, we need help in acquiring funding and where is there a better research facility than Stanford University ?
I would hope from the response you’ve had to your first article on CCSVI and Joan Beal’s generous offer to provide you with up to date research into CCSVI, along with many of Dr. Dake’s prior patients offering to talk with you “on the record” that you might write another article stating these facts as clearly and neutrally as your first.
Dr. Zamboni and Prof. Dake have never once said this is a cure for MS, they simply are finding venous problems in the vast majority of MS patients tested and Dr. Zamboni has put out a call for, research, research and more research into this correlation.
The biggest hurdle to finding out the true correlation of MS & CCSVI through research is the lack of funding! Stating the facts accurately and unbiased is one of the best ways to achieve this goal, and MS patients everywhere will appreciate those efforts.