Liberation and effect to cold hands/feet?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Did liberation had effect in your cold hand/feet symptom?

Big effect - my hands/feets are much warmer after procedure.
6
55%
Little but noticeble effect
1
9%
No effect on cold symptom, feel same as before procedure
3
27%
No effect, cause hands/feet were normal warm even before procedure.
1
9%
My warm hands/feet changed cold after procedure.
0
No votes
 
Total votes : 11

Liberation and effect to cold hands/feet?

Postby Ernst » Sat Apr 03, 2010 6:24 am

I'm still curious about this cold hand/feet symptom in MS or CCSVI. I quess there must be connection cause so many say after liberation that they felt warmer hands or feet. But how many of you liberated felt this "warm effect" after procedure? In finnish forum there was one idea that this cold hand symptom might be more common in women, maybe.. or not?

- Ernst

ps. Is there any scientific data on cold limbs in MS?
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
User avatar
Ernst
Family Elder
 
Posts: 294
Joined: Sat Nov 15, 2008 3:00 pm
Location: Rovaniemi

Advertisement

Postby AndrewKFletcher » Sat Apr 03, 2010 1:48 pm

http://www.wrongdiagnosis.com/symptoms/ ... causes.htm

Interesting list of possible causes of cold feet.
Find us on Facebook.com/InclinedBedTherapy
IBT website: http://inclinedbedtherapy.com
User avatar
AndrewKFletcher
Family Elder
 
Posts: 773
Joined: Wed Jan 14, 2009 3:00 pm
Location: Paignton, Devon, UK

Postby broomdancer » Sat Apr 03, 2010 2:39 pm

Hi Tims:
Read a lot recently on the warm feet and hands after Liberation. My husband complains that his feet are burning all the time. I don't know the significance of this. His EDSS is 6 (self-assessed) with PPMS dx in 03. On several lists for the treatment. Does anyone else have this symptom?
Regards Diana
User avatar
broomdancer
Family Member
 
Posts: 73
Joined: Fri Dec 18, 2009 3:00 pm

Postby Maestro » Sat Apr 03, 2010 3:23 pm

Yes my hands and feet are warmer after the procedure - the next day!
one of the problems I never said to my neuro, as well as neck pain. well it wasn't a neurological MS thing? I said about my back pain but his response was that it was because of my posture... He was wrong! All three problems were gone after the procedure...
V.
User avatar
Maestro
Family Member
 
Posts: 25
Joined: Tue Jan 26, 2010 3:00 pm
Location: BC, Canada

Postby Cece » Sat Apr 03, 2010 4:23 pm

broomdancer wrote:My husband complains that his feet are burning all the time.


Burning as in hot or burning as in pain? Burning-pain is caused by nerve damage, I think, and there are some drugs that can help it.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Cece
Family Elder
 
Posts: 9040
Joined: Mon Jan 04, 2010 3:00 pm

Postby broomdancer » Sun Apr 04, 2010 5:45 am

Hi Cece:
Nice to meet you. His feet burn hot, not painful and very rough, dry and scaly skin along the rim and soles of his heels.
Regards Diana
User avatar
broomdancer
Family Member
 
Posts: 73
Joined: Fri Dec 18, 2009 3:00 pm

Postby Pepe » Mon Apr 05, 2010 10:56 am

Hi,

Maria's hands and feet are warmer after the procedure. No doubts at all about it! She felt this the next day.

Regards,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
User avatar
Pepe
Family Elder
 
Posts: 141
Joined: Sat Oct 17, 2009 2:00 pm

Postby Mutley » Tue Apr 06, 2010 4:23 am

Definate improvements for me!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
User avatar
Mutley
Family Elder
 
Posts: 209
Joined: Thu Nov 12, 2009 3:00 pm
Location: England

Postby MaggieMae » Tue Apr 06, 2010 4:55 am

Broomdancer,

My husband's feet feel (to him) like they are burning or other times they feel ice cold. They are also very rough, dry and scaly.

Maestro,

My husband also has neck and shoulder pain and for the past twelve years he has had back pain that is in one area of his back. We have been to numerous pain clinics and neurosurgeons for his back and he has only found minimual pain relief.
User avatar
MaggieMae
Family Elder
 
Posts: 380
Joined: Wed May 23, 2007 2:00 pm
Location: Pennsylvania


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service