I've been a lurker for some while now after discovering CCSVI earlier this year. My partner has RRMS diagnosed 12 years ago (she's now 37).
Ever since I first read about about CCSVI I've absorbed as much information as I possibly can about it.
We were fortunate enough to get one of the early appointments with the essential Health Clinic in July this year for diagnosis. I just got lucky, I happened to check their website the very hour the appointments were put on line, so I'd booked and paid before the email even went out.
I will update progress as and when it happens, along with procedures, costs and trip reports.
What do we both feel about CCSVI?
I guess like many others on here, our first hope is something is found.
Our second hope is Liberation gives Emma some relief from her symptoms, particualrly her eyesight problems.
Best case scenario for us is progression is stopped, circulation is improved, eyesight issues are eased and life is more pleasant as a result.
In both our minds that's as close to a cure as we are likely to see in our lifetimes.
I find the debate on here interesting, both the pro's and cons and I continue to read the reports of others that have had the procedure worldwide.