fiddler finally flying... to Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Super Heros.

Postby BELOU » Fri Apr 30, 2010 8:12 am

Fiddler, by the way, as we discussed earlier in private, I sent my friend ASTRO to fill the volcano with a bunch of heavy rocks in order to let your plane reach Poland. Please do not thank me, thank ASTRO...

I'm so glad they found narrowed veins... I believe that Buffalo were wrong with their 56%...

Please take care and good luck !!!

Marc
User avatar
BELOU
Family Elder
 
Posts: 125
Joined: Tue Mar 09, 2010 3:00 pm
Location: CND

Advertisement

Second day after liberation...

Postby fiddler » Sat May 01, 2010 2:40 am

It's a rainy day here in Katowice and, since it is a holiday (Labour Day) all the stores are closed and we won't be able to get all those souvenirs and gifts we were planning to give to friends and family at home (that's our excuse, at least).

Last night a dozen of us "liberatos" and spouses/friends had a drink with Marek (who is leaving on an all-around-Poland walk for MS on Monday) at the Sky Bar and then took him out to the Via Toscana restaurant. That was our first opportunity to meet Tony and his son and Raj and his family. Tony and Raj had both been treated on Wednesday, so were in Val's "graduating class". It was a fun evening though it ended with a bit of a scare: one of our liberated friends had a fainting spell and was taken back to the Euromedic clinic for tests. Although she is prone to fainting, the Euromedic people wanted to be sure that it wasn't related to the ballooning she'd had. She was at breakfast this morning, looking fine.

As far as symptoms go, I am not noticing any differences that can be ascribed to liberation, yet: my symptoms vary day to day (or even hour to hour) so it's going to be a bit hard to tell when some slight improvements occur until they remain for a longer period of time. Some of the people from the Wednesday cohort have noticed some significant improvements in their symptoms.

PS: Thanks for putting in a good word with Astro, Marc. :D
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby eric593 » Sat May 01, 2010 2:29 pm

Thanks for detailing your experience, fiddler.

Only time will tell the impact of the procedure. We all have high hopes but reality may involve simply not progressing any further. Or no result at all and a continuation of our disease. It's only through shared experiences that we can get an accurate view of how effective this REALLY is.

I really appreciate you sharing. Wishing you a positive outcome!
User avatar
eric593
Family Elder
 
Posts: 475
Joined: Sun Feb 17, 2008 3:00 pm

Back

Postby fiddler » Mon May 03, 2010 5:46 am

I got back home late last evening and had a good night's sleep. I hope to have some time later to write up an update (and start my tracking posting), but with regards to improvements it will be more about my "classmates" than about me since I have not noticed significant changes. My wife says my feet aren't as "blue" as before, but that tended to vary anyway.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby mags4short » Mon May 03, 2010 6:50 am

Looking forward to the updates Fiddler, sorry that I missed you, I am heading off early in the morning.

Will keep a track of your postings, I hope that you see some improvements soon.

Mags x
Alone we can do so little, together we can do so much :)
User avatar
mags4short
Family Elder
 
Posts: 124
Joined: Thu Jan 07, 2010 3:00 pm
Location: UK

Postby Jaguar » Mon May 03, 2010 6:55 am

Ted

I have to say the same - no improvements of any real note. But time will tell!

Paul
User avatar
Jaguar
Family Member
 
Posts: 90
Joined: Fri Dec 11, 2009 3:00 pm
Location: Montreal

Images

Postby fiddler » Tue May 04, 2010 8:19 am

For those who might be interested, I've posted some images of my procedure on my blog: http://www.my-darn-ms.blogspot.com.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby annad » Tue May 04, 2010 9:13 am

Thanks for sharing those/that, Ted.
Hope you are feeling well!
a
:)
User avatar
annad
Family Elder
 
Posts: 207
Joined: Sat Nov 21, 2009 3:00 pm
Location: Ontario, Canada

Feeling well...

Postby fiddler » Tue May 04, 2010 9:33 am

Thanks, Anna, I am feeling well... just impatient to start feeling GREAT! :D
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby newfie-girl » Tue May 04, 2010 9:49 am

Fiddler............so glad to hear of your trip to Poland for Liberation. I wish you complete success and look foward to hearing about all the great improvements that are coming your way. Stay positive and don't despair, I know it got to be frustrating and you are excited and anxious to see the improvements quickly, but they will come in due time. Keep us posted..........God Bless :lol: :)
User avatar
newfie-girl
Family Member
 
Posts: 60
Joined: Thu Dec 24, 2009 3:00 pm
Location: Canada

metoo

Postby 1eye » Tue May 04, 2010 9:55 am

see, that wasn't so hard doctor quackenbush, now was it? and just as you had hoped, no immediate improvement!

oh, he'll feel much better soon? now, now, don't be so negative, doctor.

"Either this man is dead, or my watch has stopped."

Dr. Q

Congratulations, Mr. Fiddler!
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 3003
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada

Postby 81Charger » Wed May 05, 2010 7:34 am

Glad to hear everything went well for ya, can't wait for the positive news to come in about your improvements.

Glenn
81Charger
Family Member
 
Posts: 47
Joined: Tue Nov 24, 2009 3:00 pm
Location: New Brunswick, Canada

A first noticeable improvement

Postby fiddler » Wed May 05, 2010 7:42 am

Yes, a small thing, but definite, that I posted on my blog last night:
Tonight, as I do almost every night, I went to the gym to do my exercises. One of them I do on my back on a bench, straightening my arms with 15 pound weights in each hand. For the last 2 years my left arm has been weaker, to the point where I should really be using a lower weight - for those who do weights, you know how you really don't use a good technique when you try to use a weight that's too heavy. Tonight, for the first time in a LONG time, I actually lifted the weight with my left arm properly, and without any greater effort than I required with my right arm. It may seem like such a small thing, but since it was such a definite difference, it was really encouraging.

:D :D :D
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 3:00 pm
Location: Fredericton, Canada

Postby prairiegirl » Wed May 05, 2010 7:51 am

Great to hear-- hope you see some more improvements in time. All the best for continued recovery:D!
User avatar
prairiegirl
Family Elder
 
Posts: 228
Joined: Fri Feb 05, 2010 3:00 pm

Postby tipsyturtle » Wed May 05, 2010 8:08 am

Ted,
Happy to hear that things are moving in the right direction.
So sorry I haven't posted since my own liberation - been hanging out with friends and family in europe.
Soon,
jo :D
Katowice, April 7/8
User avatar
tipsyturtle
Family Member
 
Posts: 56
Joined: Sun Nov 29, 2009 3:00 pm
Location: Canada

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service