This Is MS Multiple Sclerosis Community: Knowledge & Support

Fiddler, by the way, as we discussed earlier in private, I sent my friend ASTRO to fill the volcano with a bunch of heavy rocks in order to let your plane reach Poland. Please do not thank me, thank ASTRO...

I'm so glad they found narrowed veins... I believe that Buffalo were wrong with their 56%...

Please take care and good luck !!!

Marc

It's a rainy day here in Katowice and, since it is a holiday (Labour Day) all the stores are closed and we won't be able to get all those souvenirs and gifts we were planning to give to friends and family at home (that's our excuse, at least).

Last night a dozen of us "liberatos" and spouses/friends had a drink with Marek (who is leaving on an all-around-Poland walk for MS on Monday) at the Sky Bar and then took him out to the Via Toscana restaurant. That was our first opportunity to meet Tony and his son and Raj and his family. Tony and Raj had both been treated on Wednesday, so were in Val's "graduating class". It was a fun evening though it ended with a bit of a scare: one of our liberated friends had a fainting spell and was taken back to the Euromedic clinic for tests. Although she is prone to fainting, the Euromedic people wanted to be sure that it wasn't related to the ballooning she'd had. She was at breakfast this morning, looking fine.

As far as symptoms go, I am not noticing any differences that can be ascribed to liberation, yet: my symptoms vary day to day (or even hour to hour) so it's going to be a bit hard to tell when some slight improvements occur until they remain for a longer period of time. Some of the people from the Wednesday cohort have noticed some significant improvements in their symptoms.

PS: Thanks for putting in a good word with Astro, Marc.

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Thanks for detailing your experience, fiddler.

Only time will tell the impact of the procedure. We all have high hopes but reality may involve simply not progressing any further. Or no result at all and a continuation of our disease. It's only through shared experiences that we can get an accurate view of how effective this REALLY is.

I really appreciate you sharing. Wishing you a positive outcome!

I got back home late last evening and had a good night's sleep. I hope to have some time later to write up an update (and start my tracking posting), but with regards to improvements it will be more about my "classmates" than about me since I have not noticed significant changes. My wife says my feet aren't as "blue" as before, but that tended to vary anyway.
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Looking forward to the updates Fiddler, sorry that I missed you, I am heading off early in the morning.

Will keep a track of your postings, I hope that you see some improvements soon.

Mags x

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Alone we can do so little, together we can do so much

Ted

I have to say the same - no improvements of any real note. But time will tell!

Paul

For those who might be interested, I've posted some images of my procedure on my blog: http://www.my-darn-ms.blogspot.com.
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Thanks for sharing those/that, Ted.
Hope you are feeling well!
a

Thanks, Anna, I am feeling well... just impatient to start feeling GREAT!
...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Fiddler............so glad to hear of your trip to Poland for Liberation. I wish you complete success and look foward to hearing about all the great improvements that are coming your way. Stay positive and don't despair, I know it got to be frustrating and you are excited and anxious to see the improvements quickly, but they will come in due time. Keep us posted..........God Bless

see, that wasn't so hard doctor quackenbush, now was it? and just as you had hoped, no immediate improvement!

oh, he'll feel much better soon? now, now, don't be so negative, doctor.

"Either this man is dead, or my watch has stopped."

Dr. Q

Congratulations, Mr. Fiddler!

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Glad to hear everything went well for ya, can't wait for the positive news to come in about your improvements.

Glenn

Yes, a small thing, but definite, that I posted on my blog last night:


...Ted

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

Great to hear-- hope you see some more improvements in time. All the best for continued recovery:D!

Ted,
Happy to hear that things are moving in the right direction.
So sorry I haven't posted since my own liberation - been hanging out with friends and family in europe.
Soon,
jo

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Katowice, April 7/8