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The destruction of myelin, the protective sheath which surrounds and protects nerve fibres causes the formation of plaques on the nerves which slow nerve impulses. A build up of heat slows down nerve transmission causing symptoms to worsen.
hwebb wrote:Other benefits I've had aside from the heat tolerance is my skin is more elasatic (so softer, and better texture), and my tears are more viscous (so no more dry eye). Oh - and I lost 15 kg in the first 6 months.
MarkW wrote:The mechanism of the impact of hot/cold/humidity on MS is not understood. How can anyone explain what CCSVI could do to these symptoms of MS ??
Eating omega-3 rich foods has no side effects, and potentially lots of benefits.
MarkW wrote:others find cold unbearable.
Around 80% of MS patients are affected by heat-
A review of the literature indicates that up to 80% of multiple sclerosis (MS) patients report worsening of symptoms with elevated body temperature; there are also anecdo tal reports of amelioration or improvement in some signs and symptoms of MS with low ering of core temperature. This paper reviews the possible physiological basis for tem perature effects in multiple sclerosis and discusses clinical trial design issues for objective evaluation of the therapeutic use of cooling in the symptomatic management of MS, cooling. garments, and core temperature measurement.
I got another interesting question in pm that boils down to:
Why are some people heat sensitive and some not?
Speculatively there are probably 2 different mechanisms in play.
1. The venous drainage and the fact the brain is cooled by the veins, and it appears in CCSVI that the venous drainage is slow, thus heat is not removed from the brain as it should be....and
2. The fact that demyelinated and damaged nerves function more poorly in heat. In fact all nerves transmit more sluggishly in heat my neuro told me, so the MSer with her demyelinated nerves has it that much harder.
For the person newly diagnosed early in the disease, you may not notice much heat sensitivity.
Others may notice it quite a bit if their venous stenosis is severe as the emissary veins cool the brain through the venous system, and a plugged venous system may result in a very hot brain in the heat. Such a person may recover hugely when circulation is restored and overnight may be vastly better.
For the person very progressed like me, probably a lot of the heat sensitivity is related to the fact that there is extensive nerve damage. Such a person may recover good venous flow but still feel weaker in the heat due to the simple fact their nerves transmit signals more poorly.
hwebb wrote:you know, I had bad heat sensitivity during and after my first major relapse. I was then diagnosed, and started taking medicine (copaxone) and made a major change to my diet (lotsa omega-3, ultra low saturated fat diet). I've had relapses since then...but have never felt heat sensitive again. I really think the omega-3 has has helped. They say it's incorporated into your cell membranes, and is a lot more flexible than saturated fats.
I would really recommend this approach to anyone. Eating omega-3 rich foods has no side effects, and potentially lots of benefits. Other benefits I've had aside from the heat tolerance is my skin is more elasatic (so softer, and better texture), and my tears are more viscous (so no more dry eye). Oh - and I lost 15 kg in the first 6 months.
Jenb wrote:Takes me about an hour to recover from my morning shower.... Haven't bathed or hot tubbed in years.
One of the major complications is that I hate the cold.. I have a terrible time recovering from a chill..dammed if you do and dammed if you don't kind of scenario.
I do notice that my frozen breakfast smootie seems to counter act the neuritis cloud that I get from the shower.
The other thing that helps with the cloudy vision is red wine.
Its great actually...I can weeble wobble, and slur along with "normal people" but I can seeeeee youuuuu... and I'm not freezing!
I 100% believe that I have a vascular problem and "MS" is a complication of my congenital disorder.
I am planning on proving it !
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