mshusband wrote:I've had quite a few people write to me today (PMs) to ask how I've done it, and they tell me stories of going to neurologists and asking about CCSVI.
I think the first thing I have to say is we've all read stories about neurologists and their dismissal of CCSVI ... those stories seem to be true based on what I've heard.
Our neuro actually made an interesting comment last time we went to see him BEFORE we asked about CCSVI, that the reason people feel tight muscles and numbness with MS is because "MS can cause a lack of blood-flow to the extremities". Now ... THAT seems to be as far from true as anything I ever heard. IT seems to me that a neurological condition CAN'T have an affect on blood-flow. But since he brought it up and opened the door, we mentioned CCSVI. He said he'd heard about it but VASCULAR isn't his specialty. So I wouldn't say he was dismissal in any way ... and did make the connection between poor blood-flow and MS but as a neurologist he couldn't make the connection I think others here have (doctors included). We did have a good chat about it however. AND he did agree that CCSVI did sound plausible. In that if the body had occlusion somewhere (especially in a key area of that body such as the brain/spinal cord) that the body would pump blood to that area to keep it alive and not through the rest of the body properly as a result (hence most MS symptoms occur in the extremities as far from the vital areas of the body as possible).
So we dropped it with him and went out on our own ... CONTACTING VASCULAR SURGEONS and INTERVENTIONAL RADIOLOGISTS.
I think bringing CCSVI up to your neurologists is a waste of time ... it IS NOT their specialty. We need to work on every interventional radiologist and vascular surgeon out there.
Just my two cents reading stories of those who have contacted me today.
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