Let's re-double our efforts

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Let's re-double our efforts

Postby mshusband » Wed Apr 28, 2010 5:47 am

I got very upset last night reading about Dr. Bonn in Philadelphia being shut down from treating CCSVI.

I got the same feeling after Dr. Sclafani got shut down ... (though I'm REALLY hopeful Dr. Sclafani is back up and running soon ... we NEED him).

BUT folks, we have what we need to really make this thing (CCSVI) take off.

KUWAIT IS TREATING EVERYONE ... they have initial results out and they are very positive ... 96% of folks found to have CCSVI in association with MS ... while only 7% of controls? COME ON ... WHAT MORE DO YOU NEED?

Forward this to doctors ... take this to appointments ... start DEMANDING to be scanned for CCSVI. Even if the person doing the scanning isn't experienced with it, as more and more people show up demanding the same thing, they will gain that experience.

I went to bed really upset last night, but this morning woke up and thought, I can mope around and be sad, or I can re-double my efforts to help all of you here. I decided the second was a better option.

If you want to help me ... great. PM me and I'll give you my thoughts ... I'm not posting any sensitive information on the boards for the general public to see anymore (doctors names, locations of possible doctors we reach, etc). BUT if you have a history here, and post regularly, we will help you in time. I'm not going to give information out to someone with zero posts, who all of a sudden out of the blue says hey, I'm from your area or know someone from your area ... can you help?

Now is our time ...

GREAT things will happen within the coming months, I'm determined now more than ever ...

"Was it over when the Germans bombed Pearl Harbor?"

Sorry for the rant ... I hope some of you join in on this and get it moving. We've all read the results. They are real folks. I've talked to at least 50 liberated people personally ... it can happen for you too.
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Postby BELOU » Wed Apr 28, 2010 7:01 am

German bombed Pearl Arbour? You meant Japan I guess :wink:
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Postby AMcG » Wed Apr 28, 2010 7:18 am

German bombed Japan? I don't think so. But your pearl arbour sure sounds pretty.
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Postby mshusband » Wed Apr 28, 2010 8:16 am

I guess none of you saw Animal House?

Must be an American thing ...
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Postby ndwannabe » Wed Apr 28, 2010 8:58 am

The problem I have with going to the doctors and demanding the tests is that I am not that rich. My insurance does not cover everything.

I had an inconclusive CT scan and even more inconclusive (:D) Doppler test. I have a bill sitting on my kitchen table that I am afraid to open :oops:

Not sure how much impact it made on the doctor. He did not even call me to discuss "the results".

So, if I keep on going to the doctors with the intention of proliferating CCSVI knowledge, I am facing the bankruptcy (OK, not quite, but you know what I mean)
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