This Is MS Multiple Sclerosis Community: Knowledge & Support

Georgetown University is offering Screening of CCSVI. Go to following website: http://www.georgetownuniversityhospital ... ?id=556557

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RRMS Diagnosed 1997
My house burned down, now I can see the moon.

2 problems I can see are getting the note from a neurologist.Might be tough.
And in 2 places I've seen georgetown mention they only find ccsvi in 50% of ms patients. Maybe the 62% findings of buffalo are the truth there. Dunno, I'd only go there if my MS was bad because the ccsvi would be bad enough for them to see it.

Saw in the tracking thread you're having your liberation procedure today?


GOOD LUCK!!!


DC, NY, Germany, Poland, Bulgaria, UK, Australia, California, Arizona, India and many liberation procedures being done in parts (semi)unknown ...

The CCSVI wave grows ... and it's growing quickly.

I know a lot of people are frustrated with the shut downs and things like that ... but folks, honestly aside from a FEW people in the world - who had heard of CCSVI before last November? Now you have treatment going on on almost all continents of the world ...

I would think it would take a LONG time to turn around 75 years of medical THEORY ... we've really got the ball rolling in just 8 short months. That's really AMAZING when you step back and look at it like that.

I was driving to work today and I heard a local commercial (what they call a "UPMC minute" which is the major medical hospital in Pittsburgh) where they discuss different health conditions. Anyway ... they were discussing a stroke and how important it is to get in to see a neurologist as soon as you have stroke symptoms because "time lost is brain lost" and the best way to recover function is to get it taken care of as quickly as possible. They even mentioned over time it's likely some things lost during a stroke will return as the body heals itself ... but the best bet is to get to a doctor/hospital immediately.

I couldn't help but relate this to CCSVI. Some people expect a miracle with it ... but it's not a miracle. Yes some stuff will be fixed VERY quickly - but the built up symptoms (the stuff you've had for a long time) will take a longer time until the body re-routes and heals itself.

I just don't get why neurologists don't put two and two together.

Stroke = vascular (artery) problem which causes neurological effects ...
MS = vascular (vein) problem which causes neurological effects ...

I guess it's just because they were never taught this ... and it'd be hard to learn it in 8 months ... but it IS going to happen.

The two are so similar (the commercial mentioned numbness, loss of use of parts of the body, etc etc) ... it just amazes me these educated men (though that doesn't necessarily mean smart) can't put two and two together and get four.

I think it's an example where what you think you know gets in the way of what you could know. (The autoimmune red herring.)

I agree completely about there having been a lot of progress in the last seven months. It has been great hearing reports of new doctors coming on board...used to be just Dake or going to Poland...now for some of these studies to get their IRB approval and get going!

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Today I called Georgetown. The woman I spoke to stressed that it is only an ultrasound, and it would not be worth it for me to travel there for it, as it is a test that can be done pretty much in any city.
She also said the liberation procedure is not being done anywhere in the US because "2 people died". I didn't talk any further with her.
I'm going to try to get local testing.

I'm wondering if the lady you talked to knows what she's talking about with regards to the ultrasound? It's not easy to find labs who know how to do the proper protocol for the doppler or are willing to take the time to learn. Does she think they're just doing a typical 2 minutes lay down and stick the probe on the neck exam?

I'm really surprised she would say that.

I wonder what the doctors at Georgetown would say if they knew that woman was giving out that type of false information. I would have gotten her name and asked to speak to someone above her.