That's what I'm talking about- CALL THEM OUT!!! WTG!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby BooBear » Fri May 21, 2010 3:02 am

I like all the ideas posted on this thread with regard to advertising, etc. The more people hear of this, the more people can ask questions and the harder it will be to shut this down.

Even the simplest things should help. I have told everyone I know about CCSVI and the Liberation treatment. Today, I posted a brief status update on my facebook page that stressed people should be allowed this treatment and encouraged my friends to copy and paste this on their status as well.

You know those car glass markers that people use to congratulate someone or support their team for a game? Our rain is supposed to abate here this weekend, so I am even marking up my car. :) You never know who may see it in a parking lot or on the highway that is impacted by this disease or know someone who is impacted.

We need to spread the message and spread the hope. They can't silence us forever.
Three veins angioplastied.  One renewed life.  
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Postby PCakes » Fri May 21, 2010 7:13 am

I will check today on printing costs for the brochures.. Please send any CCSVI links or contact numbers that would be key. Like..Tim's, Dr Zamboni research links, etc .. i am working toward eye catching, easy to read, couple of key points, maybe short quotes from those liberated, that will inspire curiousity while steering clear of 'just another crazy idea'.
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Postby ReddE » Fri May 21, 2010 9:33 am

The best thing that I done was got my GP's email from him and sent him a couple different websites to read when he could. My neuro would not give me his email address of course. The next time I went to see my GP he gave me his support and if I needed anything to have the CCSVI procedure done he would help me if he could. But I agree we have to get the word out there. Everybody's world is on the move and it's moving in fastforward. A lot people only pay attention to their own surroundings and I guess I am guilty of that also. I 've stopped and talked to people about CCSVI, its association to multiple sclerosis and the difficulty getting the procedure done here in Canada. The thing is though, that's were it stops!!! That person you just talked to may mention it once after that or not at all. There has to be more eye catching publicity that really hits home.

dx 2008 ppms
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