SIDS and ms, unclear etiologies, clear therapies?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

SIDS and ms, unclear etiologies, clear therapies?

Postby Bruce11940 » Tue May 25, 2010 9:02 pm

An anesthesiologist once told me that, given all we know about chemistry and physics, no one really truly understands how or why certain drugs put someone to sleep. He told me he learned in med school it was one part pharmacology and 3 parts trial and error. This knowledge gap really hasn't seemed to slow down the medical community.

Similarly, while no one really understands SIDS, putting a baby on their back while they sleep can have profound effects. Doctors have no idea why it works....it just does.

I will admit, I don't really understand how blood flow and ms are related but the knowing seems to be the least important at this point. Lets get on with the fixin if the results are really there.

It seems the scientific community gets hung up in the paperwork and feels compelled to come up with a mechanism before they can move forward.

Thoughts?
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Postby cheerleader » Tue May 25, 2010 9:51 pm

interesting points, Bruce. Doctors have a hunch why back sleeping is better for infants. Infants have less apnea (pauses in breathing) while lying on their backs and are less likely to re-breathe their exhalations. For some reason, belly sleeping has up to 13 times the risk of death as back sleeping....so we put babies to sleep on their backs. I did it for my child, 15 years ago.

My husband gasped for air for many years...scared me to death, he would wake up from his apnea, and had trouble sleeping. He had two occluded jugular veins, which are now opened--and no more snoring, sleep apnea, or gasping for air. He sleeps deeply and dreams again, one year later--still good.

The connections are there. No need for we laypeople to understand blood flow and MS, Bruce. Jeff's doctor said that his apnea was due to venous insufficiency. Which is now gone. Dr. Haacke is studying the connection.

Dr. Hubbard, a San Diego neurologist, is testing MS patients using fMRI BOLD technology, to measure the brain's oxygenation before and after venous angioplasty. Here are his first charted results. It is his son, Devin--
link to Devin's charts

We'll get there. More doctors are looking into the connections everyday. Which means we can breathe a bit easier. I know I am!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Unheard of?

Postby 1eye » Tue May 25, 2010 11:55 pm

I have never heard of this. I mean, today I saw an email from a guy named Joe, who said he had been one of the first people Dr. Dake Liberated. He said before the surgery he was EDSS 5.5. Housebound. Now, a year later, he claims he is EDSS 0. I don't know how Monsieur Cheerleader is doing these days, but 0? That is unheard of. How many cases like his are there? Dr. Freedman had one case with disability reversal like that from all the HSCT patients. We need to tally up how many people this has happened to.

Cases like these are more than enough to convince people not only that CCSVI causes MS, but that MS can be cured. So aside from those who have other life-threatening health problems, most people can just hang on till Liberation comes to your town! Nobody can ever say we are all desperate now. Rumours of our despair have been greatly exaggerated. We don't even need to be hopeful anymore. This really is a certainty. 'MS'/CCSVI can not only be stopped. IT CAN BE UNDONE. The healing capacity of our telomeres is free to make us healthy again.

Yay! :lol: :D :) :!: :!:

Just as a by-the-by, a doctor once told me that I had lots of oxygen in my blood. I asked him why, when I had such bad apnea. His explanation was that my blood would compensate for the low supply by getting better at dissolving it or something. Anyway he said my sleeping/breathing problems were actually the cause of my high oxygen. Could CCSVI be doing it too? Do we have an indicator of stenotic veins, by measuring blood O2?

Is any of what he said sensible to you other doctors and scientists out there?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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sids, ms

Postby blossom » Wed May 26, 2010 12:27 am

soooo good to hear the positive. we all want the liberation treatment like yesterday but tomorrow will be o.k. too. i was talking to someone not too long ago about ccsvi and they commented that it kind of sounded like a fairytale to them. i told them well i'll take that fairytale because living with ms is a blanking nightmare. may be better odds coming up for us ppmsers too.
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Re: SIDS and ms, unclear etiologies, clear therapies?

Postby AndrewKFletcher » Wed May 26, 2010 1:28 am

The catagorising of Sudden Infant Deaths was changed at the same time the back to sleep campain was brought in to exclude any cases that could be accounted for in other ways and this scewed the statistics.

Children are still dying in their sleep but we do know that babies that share a bed with the mother was once thought to be a cause and now looks to be safer. Could this be because they sleep on a pillow and are therefore inclined?

Dr Chantler, senior research advisor to the Foundation For Sudden Infant Death Syndrome told me at her home in London that she believed I had solved sudden infant death syndrome after observing a simple fluid filled tube model and hearing how it applied to human circulation. (Quite prepared to take a lie detector test on this).

Another forum discussing SIDS and IBT
http://www.thenakedscientists.com/forum ... #msg288745
Find us on Facebook.com/InclinedBedTherapy
IBT website: http://inclinedbedtherapy.com
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Postby Cece » Wed May 26, 2010 10:57 am

I bet sleep apnea is really, really bad for someone with CCSVI. Oxygen deprivation on top of oxygen deprivation. I'd like to see that done as a registry study (like the one correlating people with vascular comorbidities and MS, that people with vascular comorbidites progressed significantly sooner, only instead looking at sleep apnea and MS)!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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