Positive stent stories

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Positive stent stories

Postby mlrm » Thu Jun 03, 2010 5:35 am

In this tread I am calling to all of you who have had stents placed in your veins. How are you guys doing?

I am going to Poland next monday and am seriously considering what to do if they offer to put a stent in my jugular vein.

I have only had negative responses about stents from the doctors I have talked to recently. If you want to see these responses go to my webpage: mariesflowoflife.dk

Does anybody have POSITIVE stories about stents to share with me and the others waiting for the procedure. I would really like to see this from both sides of the veil.

Hope to hear from you (before monday):-)

Marie Louise
User avatar
Getting to Know You...
Posts: 10
Joined: Wed Dec 16, 2009 4:00 pm


Postby ErikaSlovakia » Thu Jun 03, 2010 6:05 am

Hi Marie Louise!
I am 7 months after the procedure in Poland today. I have a stent in my left lower jugular vein. My procedure was fine - no pain I only felt pressure for 2 seconds. I have never felt my stent. I was even sleeping on my left side that night. I had 1 follow up so far with Dr. Simka - 77 days after my procedure. The flow in my left jugular was not still as strong as in my right healthy jugular. But it was zero before the procedure. Couple of doctors in Slovakia told me before my procedure that there is no reason to be scared as they use stents for jugulars in Slovakia as well just not for MS patients.
Well, these days they already use it for MS patients.
An interven. radiologist and an angiologist who do the procedures in Slovakia would like to see my jugular next week.
I think MS is much bigger risk than a stent. On the other hand I knew I can go to Poland again in case of emergency and I was sure at least 4 doctors will be able to check me here and do for example angioplasty or anything. We do not pay for this in Slovakia.
I have been in contact with Dr. Schelling as well and Dr. Leonardo Corcos as well.
I felt and I feel safe about stents. I have informed my neuros and my GP as well.
I understand your situation might be different.
Good luck with any kind of decision and the procedure!

Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby nn98200 » Thu Jun 03, 2010 2:03 pm

Hi Marie, Erika and everyone!

I just wanted to thank Marie for creating this topic! And thank you Erika as well for sharing your experience! I created a thread recently called stenting & restenosis but have not gotton much response at all. I hope your topic will have more success! I am also very interested in stenting. If people don't feel like posting here but have their own web pages where they share their experience, please just post those links!

Thank you!!!
User avatar
Getting to Know You...
Posts: 13
Joined: Tue Mar 02, 2010 4:00 pm

My stent

Postby fiddler » Thu Jun 03, 2010 4:12 pm

I had a stent placed for a malfunctioning valve in my left jugular. I sort of felt where it was for a couple of days after the procedure, but after that pretty well forgot about it. If I had told them not to stent, then I would have worried that lack of quick improvement was caused by restenosis. That is still a possibility since my right jugular was only ballooned, but that's something I'll find out at my 6000 km checkup in Katowice in October. At least with the stent in my left jug, it's not so likely that I have completely abnormal bloodflow and I don't waste time worrying about it.

Allowing them to stent you is a personal decision based upon many factors, not the least of which are the possibility of restenosis and the hassle of getting back to Poland to have it done again.

Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
Family Elder
Posts: 398
Joined: Wed Dec 02, 2009 4:00 pm
Location: Fredericton, Canada

Postby mlrm » Fri Jun 04, 2010 4:46 am

Thanks for your respons you guys. I hope to hear from more people with positive stent stories:-)
User avatar
Getting to Know You...
Posts: 10
Joined: Wed Dec 16, 2009 4:00 pm

Postby magoo » Fri Jun 04, 2010 11:15 am

Love my stents:)
Painful the first week, but my improvements have been wonderful. I like the fact that I worry less about restenosis. October will be one year and I'll have them checked at Stanford.
Best of luck!
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
Family Elder
Posts: 574
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service