my 'liberation'

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

my 'liberation'

Postby zahmeds » Thu Jun 03, 2010 8:14 am

Name (if want to give other than TIMS login name):
Male/Female: M
Age: 29
Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): SPMS
Lesion locations (most affected side, if known), number:
MS treatments: copaxone, avonex, LDN in that chronological order

MS symptoms before stenosis intervention: hesitanc,y right leg weakness, right foot drop, right hand tremor, head titillation, lak of balance, upgoing nystagmus, right optic neuritis, occassional diplopia, cant write, cant typ, cant walk, cant stand
Number of relapses before intervention (if applicable): ?10
EDSS before CCSVI intervention (self-assessed or physician-assessed?):
[To review EDSS rating, click the following link: ... scale.html ]
FSS before CCSVI intervention:
[To calculate FSS rating, click the following link: ]
MSIS before CCSVI intervention:
[To calculate MSIS rating , click the following link: ]
Are you using Inclined Bed Therapy I.B.T? (Y/N) n

Have you had testing (and possibly procedure) for blockage yet: Y


Date/location of testing/procedure: Max Hosp, New Delhi
Type of venographic study: MRV, Doppler
Diagnosis: Diagnosed on imiating procedur - Left IJV narrowing approx 50% with abnormal back floow
Type of procedure: Digital subtracion angioplasty
Procedure/drug related symptoms:
pain at point of of procedure - right ggroin

Number of relapses since first CCSVI intervention:
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates): I can urinate freely. Nothing else - yet
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update:
User avatar
Posts: 3
Joined: Mon May 03, 2010 3:00 pm


Postby Habenoughyet » Thu Jun 03, 2010 8:33 am

Good for you... Don't forget, "baby steps"!!! :wink:

"Never argue with stupid people... They bring you down to they're level and beat you with experience"
User avatar
Family Member
Posts: 74
Joined: Thu Nov 12, 2009 4:00 pm

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service