mmcc wrote:Why would you want people who have not neccessarily jumped in the CCSVI pond not to come here. Personally, although I am going to have the procedure, I think opinions from those who have decided to wait or not have it at all to be valuable.
This is not "magical." It should be a rational, science based decision. The truth is that "belief" is not the issue. Even the inventor of the procedure thinks more research needs to be done.
There have been many discoveries made which over the long haul were not nearly what was hoped for. This could be one of those. The risks are not yet clear - NO risk is clear in less than a year. The benefits are also not known - are they only a few months, are they years, are they permanent?
Anyone who thinks that they are having the procedure and are not being guinea pigs is not being realistic. NO DRUG would be administered by doctors without far more testing than this procedure has had.
If this thread becomes nothing but a cheering section, it has no value. The value is in sharing information - good, abd, and ugly.
Well said, and some more for them that forget were are we and why we are here:
Welcome to This Is MS
This is MS is an unbiased, unaffiliated site dedicated to eradicating Multiple Sclerosis. We offer an open-minded approach to *all* potentially viable treatments, ranging from the FDA-approved disease-modifying drugs such as Copaxone to alternative treatments such as Low Dose Naltrexone.
Our only purpose is to serve YOU.
Please join us, and welcome to the site.
I am not here for any voting or for segregation on believer or unbeliever.
I am here because I feel Welcomed here, but some of us here constantly make "Who is not with me, is against me" declarations.