Wow, wasn't it silly 10 years ago ... looking back on it?
That was the day, a report came out showing that CRABS drugs are basically ineffective.
You remember that day right? Remember? That was still when persons were diagnosed with MS - a medical condition of unknown origin to which you were given a choice of a few drugs and not a lot of answers ... basically a whole lot of people for about 70 years were told ... "well, we really don't know" but these drugs work on mice with EAE. Yet, those same doctors couldn't wrap their heads around why they didn't work on humans ... or what bloodflow had to do with the disease they spent all these years studying until this "Zamboni outsider" came up with this theory ... (silly, I know).
Well a lot sure has changed since that day.
Now, in the medical world, we've come to realize a few things thanks to those pioneers and wonderful initial doctors who had open minds. Thank you Dr. Zamboni - by the way I hope you're still polishing your Nobel Prize at least once a week. Thank you Dr.s Dake, Simka, Sclafani, Siskin, Lyduga, Hubbard, Hacke, Zivadinov, Schelling, Vogl, Sinan and (I'm sure I'm forgetting some - but it has been 10 years). PS Dr. Zamboni, remember when they mocked you? (Colin Rose, Dr. Freedman, the community of neurologists ... who got the last laugh?)
Anyway, as I was saying folks in the year 2010 ... we've learned a few things ...
After all the IRB non-sense, study approvals, and Canada and the US FINALLY coming on board with treatments ... things changed rapidly.
Now WHEN a person is diagnosed with "MS" it's no longer a disease ... it's a condition resulting from poor blood-flow in 3 main veins. The INTERNAL JUGULARS (which drain veins in the head and neck) and the AZYGOUS VEIN (which drains the veins of the spine). As soon as that is detected, patients are sent to get their veins fixed. Sure, sometimes there's still restenosis ... but it's easily fixed like I said. Back in 2010, remember the cases of people who said they had MS but not CCSVI? Well ... that was only sort of true. Some of them didn't have MS, some of them had CCSVI - but doctors were still learning (hey, we're human too ... cut us a break ... we might act like we know it all ... but nobody really knows it ALL).
In 2020, there is no Primary Progressive, Secondary Progressive, Relapsing-Remitting ... that was nonsense anyway. All it ever was was different types of stenosis in different veins, over different periods of time. You see, we as doctors came to find out, it was just a matter of which veins were stenosed and which part of them needed to be 'fixed'. As long as you didn't have this for a long period of time, well ... your body will take care of the rest once your veins are cleared. Sure there is still the occasional odd case - like after an accident - when veins can't be fixed. We wish that wasn't true, but unfortunately, it still is ...
But in 2020 MS is no longer a "disease" ... it's just a result of CCSVI and TIME. We still haven't figured out the genetic defect, so there's no CURE for CCSVI, but it's easily treatable. Heck, we've even come to know in the past 10 years of study that BOTH stents and angioplasty are relatively safe ... remember all that misinformation in the beginning? It really just was a simple as having proper plumbing. You don't need 30 years of medical experience ... that's just good common sense. The amount in has to equal the amount out ... or there will be trouble somewhere. (PS thanks for the line Dr. Sclafani - you really were a key player in turning this tide, what with the first IRB approval and all).
Anyway, like I was saying ... this isn't hard. MS isn't a disease - it's just what happens when your central nervous system didn't get enough oxygen for a long period of time. We catch CCSVI early now ... and we fix it (we've gotten really good at fixing it too - finding those valves/flaps/leaflets and keeping them open). It was really just a matter of finding the right places in everyone to fix ... we've even developed better equipment to do so.
We've also learned that the body heals itself quite nicely. Sure in the beginning there were all those people with YEARS and DECADES of damage done by CCSVI (or I guess what you'd still call MS in 2010) ... but now since we catch it so early ... the body can quickly restore/rebuild/repair nerve pathways. It's not like it was 10 years ago. Like I said, there is NO PPMS, RRMS, SPMS ... after all ... all it was was CCSVI + TIME + different veins. It really was all as simple as lack of good nutritional blood to critical parts of the body ...
Remember that day when Dr. Freedman finally admitted he was wrong?
Remember that day you all went to your neurologist and asked "why didn't somebody figure this out sooner? This is all so simple."
Remember that day Colin Rose apologized for all of his nasty remarks about CCSVI ... oh that's right he never did, he just started blogging about something else when he realized he was wrong.
Anyway ... it really was all as easy as it sounds. MS ... we don't even really know what that is in 2020 anymore. The books have all been re-written, so thank you pioneers in 2009/2010 - you were determined not to be silenced. YOU stood up for the first thing that ever made real sense in regards to MS (even if it was a theory of before EAE existed - a century+ old - and one that several doctors through the years tried to convince people of).
The human body is a beautiful thing ... a complex thing ... but often times, it's a very simple thing. Get its cells nutrition (oxygen) ... and it will be healthy.
Until 2020, keep fighting the fight ... CCSVI is going to be proved. It's just a matter of time now ... Just read the stories of people benefitting today ... soon ... that will be everyone.
Heck, the MS Societies even came around relatively quickly - too bad it was too late (of course they no longer exist - though CCSVI Alliance is doing quite well).
PS - a hint from someone in 2020 - the US still hasn't won a World Cup - so you soccer fans ... don't go wasting your money betting on them.
OK ... I'm a very logical person. I'm an engineer. It's what I do. Things work for a reason. The body works for a reason. My guess is ... everything I just said above will be true 10 years from now. It's just a silly way of looking out 10 years and mocking what's going on right now - except what's going on right now is very serious. KEEP FIGHTING. CCSVI just makes too much sense.
Sure there will be those who mock this post (I'd bet Lyon/PatientX/Concerned if anyone wants to bet me) - but just remember that day when they have to admit they were wrong.
Catch CCSVI early, stop it completely, and the body will take care of the rest. No damage in the body is 'permanent' it's just a matter of time too.
I'm telling you folks ... there's a lot of debate and learning right now ... but what is the learning? Just learning how to FIND EVERYTHING and TREAT EVERYTHING.
There are no differences in types of MS (PPMS/RRMS/SPMS) except where the occlusions are in the veins. Mark my words ... 10 years from now you'll see. It really was all just a matter of flow.
Last edited by mshusband
on Fri Jun 04, 2010 9:36 pm, edited 1 time in total.