LANDMARK CASE ???? A link ???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
Gordon
Family Elder
Posts: 296
Joined: Wed Jan 06, 2010 3:00 pm

LANDMARK CASE ???? A link ???

Post by Gordon »

I heard of a case that goes like this.

This fellow went to Poland, a last ditch effort, as his neuro wanted to put him on a full suite fo Chemo to try and stop his MS which was out of control completely. He was going down fast.

The Doctors in Poland did the liberation treatment on. one of his IJV was squished flat and the opened it up and got his blood flowing.

He has gone in one week from going down into the abyss, to starting to jog. One week.

When I talked to him and asked when his MS started, he said that about 5 years ago he got hit in the side of the throat by a hockey puck as he tended goal. It knocked him out and then a couple of years later his MS staarted

When he asked the doctors which side the did the liberation on, it was exactly where he had been hit by the puck.

This tells me that the stenosis of veins may not alwasy be congenital in origin.

G
User avatar
thisisalex
Family Elder
Posts: 218
Joined: Wed Dec 02, 2009 3:00 pm
Location: Hungary
Contact:

Post by thisisalex »

interesting!
could you please provide more detailed information?
do you know him personally?

It would be nice to welcome this fellow here! please tell him to register here :)

alex
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

Post by 1eye »

My 'MS' started the day after I had spent the night not sleeping, trying to use a wooden couch-arm as a pillow. My weight (then considerable) was on my neck. I had a numb pinkie after that, which I still have. Does that make me PPMS?
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
User avatar
paulmur
Family Member
Posts: 52
Joined: Thu Mar 13, 2008 3:00 pm

Post by paulmur »

1eye wrote:My 'MS' started the day after I had spent the night not sleeping, trying to use a wooden couch-arm as a pillow. My weight (then considerable) was on my neck. I had a numb pinkie after that, which I still have. Does that make me PPMS?
That is just about verbatim the circumtstances for my first exacerbation. I worked all night.. slept between two chairs with my neck bent. Started getting pins and needles and numbness the next day. had a complete bout about two days later.
User avatar
Hockeydad
Family Member
Posts: 69
Joined: Wed Mar 10, 2010 3:00 pm
Location: SW Ontario,Canada

Post by Hockeydad »

Wow, me too. After a real tough workout, I had a a tingle in my left arm. Within a week it spread to my feet. Hmm.
RRMS since Feb , 2010. No drugs, just vitamins and exercise.
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

Mine came after an operation that caused me to wake up gasping for air with an epidural that didn't wear off for 3 days (who knows what else happened to me in that op) Whiplash car accident made it worse.
User avatar
belsadie
Family Elder
Posts: 106
Joined: Sun Mar 28, 2010 2:00 pm

Post by belsadie »

About 6 months after varicose vein surgery, bilateral legs, my first "attack" happened in my legs. I'm sure V. Veins are an indication of venous insufficiency. There's got to be "other" triggers along with the congenital aspect. They HAVE identified the chromosome location for venous disease:
"Genetic research proved in August ,2009 that people with MS have a defective chromosome 6p21.32 venous disease. It was only released to the public on April 28,2010, after the Annual Neurological meeting in Toronto, Canada."
It seems that the Cause of this disease/congenital condition/result of trauma is-proving to be very complicated.
User avatar
Drury
Family Elder
Posts: 237
Joined: Sun Mar 28, 2010 2:00 pm
Contact:

Post by Drury »

My daughter's MS started after severe brain trauma and neck and back injury from being hit by a car. She had no prior symptoms and was complaining of leg weakness shortly after her accident and diagnosed a year later.
Yes I definitely think in her case it was injury related.

Drury
User avatar
3girls
Getting to Know You...
Posts: 15
Joined: Sun Feb 28, 2010 3:00 pm
Location: Los Angeles
Contact:

Post by 3girls »

all 3 of my episodes were preceded by neck injuries - not major ones, but after some time with the chiro I found significant relief.
User avatar
dlb
Family Elder
Posts: 202
Joined: Sun Nov 22, 2009 3:00 pm
Location: Didsbury, Alberta Canada
Contact:

Post by dlb »

belsadie,
WOW... that is so interesting!
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

Post by blossom »

i had a very bad fall that stoved the r. side of my body and jerked neck badly. my symptoms started about a wk. later. had absolutely no symptoms before.
User avatar
Gordon
Family Elder
Posts: 296
Joined: Wed Jan 06, 2010 3:00 pm

His Journal

Post by Gordon »

Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”