Letter writing campaign for Barb Farrell - VICTORY

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ms2009 » Sat Jun 12, 2010 10:48 pm

Done.
This is the letter that I have sent: http://businessleader.blogspot.com/2010 ... rrell.html
User avatar
ms2009
Family Member
 
Posts: 44
Joined: Sat Jan 16, 2010 4:00 pm

Advertisement

Postby foreignlesion » Sun Jun 13, 2010 12:33 am

Not meaning to alarm anyone with this scary statistic, but I thought it may add a sense of urgency to some of our letters.

Taken from Stats Canada, Canadian Vital Statistics, this is an official Stat as of 2006 (the newest available):

433 MS related deaths/year in Canada.

How many more people have already died or will die without the option of being treated for CCSVI?
User avatar
foreignlesion
Family Member
 
Posts: 84
Joined: Sun Jul 12, 2009 3:00 pm
Location: Regina, Saskatchewan

Postby mangio » Sun Jun 13, 2010 12:41 am

here's the number to call,
705-728-9802 B. Hospital
User avatar
mangio
Family Elder
 
Posts: 288
Joined: Thu Dec 31, 2009 4:00 pm

Postby hope410 » Sun Jun 13, 2010 1:12 am

With the Parliamentary hearings on Monday night and Tuesday, with Drs. Zamboni and Simka presenting, I think this is exactly the kind of real-life account that needs to be brought out to the public and to the attention of the policy-makers. It puts a name, a face and a real life story to what we are asking for. Sometimes that helps to personalize it.

So let's do our best to make our plea on behalf of Barb and her family for some assistance. It could echo far at this critical juncture.
User avatar
hope410
Family Elder
 
Posts: 125
Joined: Mon Mar 08, 2010 4:00 pm

Postby HappyPoet » Sun Jun 13, 2010 4:10 am

Cece,

Consider it done!!

You know I think the world of you, and after reading this thread, I now think the universe of you.

We must help save her, and we'll give it one heck of a try!

Thank you, Cece.
User avatar
HappyPoet
Family Elder
 
Posts: 1401
Joined: Thu Jul 09, 2009 3:00 pm

Postby coin » Sun Jun 13, 2010 6:00 am

done! you can make a tick for bavaria, Germany:-))
and also thanks to CeCE!!!!!!
User avatar
coin
Family Member
 
Posts: 63
Joined: Thu Dec 24, 2009 4:00 pm
Location: germany

Postby girlgeek33 » Sun Jun 13, 2010 7:11 am

I'm on it, via email though. Still not able to write very well... This makes me sick. I hope as many Canadian MSers in the area can have a rally for her at her hospital!!!!!!
User avatar
girlgeek33
Family Elder
 
Posts: 150
Joined: Thu Nov 26, 2009 4:00 pm
Location: NJ

letters in the works

Postby Catra » Sun Jun 13, 2010 8:03 am

Cece,

I too saw this on Facebook and will be composing and sending my letters today.

It amazes me that a simple procedure like this which shows immediate results can be arbitrarily discounted for MS patients. I take copaxone and it has been deemed effective but the researchers and scientists do not even know for sure how it works in the body, yet a vascular angioplasty which doctors can easily understand and explain needs to be halted and researched further. How ridiculous is that????

I hope the letters will change some minds enough to help Barb.
User avatar
Catra
Newbie
 
Posts: 2
Joined: Sat Jun 12, 2010 3:00 pm

Postby girlgeek33 » Sun Jun 13, 2010 8:07 am

I emailed because I can't write all that well yet. But, might I suggest sending both emails and letter for those that are writing letter. Barb may not have time for snail mail? I hope she does but she needs something to happen now!
User avatar
girlgeek33
Family Elder
 
Posts: 150
Joined: Thu Nov 26, 2009 4:00 pm
Location: NJ

Postby Shueywho » Sun Jun 13, 2010 8:14 am

I found this quote last night and thought it really fit here with this movement.

Margaret Mead (American Anthropologist)
Never doubt that a small group of thoughtful citizens can change the world. Indeed, it is the only thing that ever has.

Thank you, everyone. Cece, you amaze me with your dedication.
User avatar
Shueywho
Family Member
 
Posts: 38
Joined: Mon Nov 23, 2009 4:00 pm
Location: Brantford, Ontario

Postby mangio » Sun Jun 13, 2010 8:20 am

Her patient advocate at Barrie Hospital is:
James Sweeny
705-728-9802
Dr C Guest I.R. Imageing Dept.
User avatar
mangio
Family Elder
 
Posts: 288
Joined: Thu Dec 31, 2009 4:00 pm

Postby Cece » Sun Jun 13, 2010 8:46 am

What amazes me is the number of addresses and emails and phone numbers that have been added to this list. You guys are fantastic.

If you've already sent an email, consider printing it off and sending it by mail as well...double the impact...Barb Farrell wants CCSVI treatment, she was two days away from getting CCSVI treatment, let's get her the CCSVI treatment!!!
Last edited by Cece on Sun Jun 13, 2010 10:03 am, edited 1 time in total.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Cece
Family Elder
 
Posts: 8994
Joined: Mon Jan 04, 2010 4:00 pm

Postby welshman » Sun Jun 13, 2010 8:55 am

Just a thought for everyone, at the bottom of the newspaper article there are links for various "things". When I first read this yesterday,
I sent e-mails of the article directly from the paper to my M.P. at both his local and Ottawa offices, raising the issue of the Commons "take note" debate which I believe is tomorrow (monday).
User avatar
welshman
Family Elder
 
Posts: 112
Joined: Wed Dec 16, 2009 4:00 pm
Location: Kelowna B.C. Canada

Postby pegmegrund » Sun Jun 13, 2010 9:00 am

Thank you for providing email addresses. I've sent emails to the government officials, as well as the the news organizations listed.

Cece - thanks for organizing this. Barb's situation just breaks my heart. I hope that we can be heard and that she can have treatment.

As I was sending my emails, I was picturing the video of Dr. Zamboni at the AAN conference asking for both more research and also compassionate treatment at the same time. I hope this becomes reality.
Last edited by pegmegrund on Sun Jun 13, 2010 10:22 am, edited 1 time in total.
User avatar
pegmegrund
Family Elder
 
Posts: 110
Joined: Sat Oct 31, 2009 4:00 pm

Postby bestadmom » Sun Jun 13, 2010 9:33 am

Done. Thx Cece for spearheading this.
User avatar
bestadmom
Family Elder
 
Posts: 722
Joined: Mon May 18, 2009 3:00 pm
Location: CT

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service