This Is MS Multiple Sclerosis Community: Knowledge & Support
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We need people whom have been liberated to start posting their verified EDSS before and after liberation which would help demonstrate the benefits to the medical community that treating CCSVI with balloon dilation is a safe and effective treatment to be considered in treating patients with MS.
I agree, for my own sake given the bad shape I'm in, how have people physically improved , I've watched a few videos online, the few I've seen there are definite improvements, one none unless that has changed,one a bit better, etc.
Sorry to pour cold water on this but these measurements are highly subjective. Any neuro who wants to be negative will simply say any improvement is measurement bias.
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS. Mark's CCSVI Report 7-Mar-11: http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Snowbound, soon http://www.ccsvi-tracking.com will be available.
MarkW, you're right that most of these are subjective but this project also makes it possible to registrate and view measurements by professionals...
While self-assessed scores certainty are subject to bias, aren't assessments by neuro's using the same scale subject to their own personal agenda's? The field lacks objective, quantifiable measurement metrics.
I'm going to add that any assessment is subject to bias. I have had different doctors assess me and come to different conclusions. A trained neurologist who is an MS specialist, for instance, will notice abnormalities that another doctor may miss. Example: My neuro explained the "afferent pupil defect" to me that I have, which is a sign of optic neuritis, which different doctors did not notice, and in fact very few doctors ever pick up on at all.
I have also had a baseline sixth cranial nerve paralysis for years so I *always* have double vision to the left. Most doctors notice it immediately when doing a neuro exam, but I have had a number of doctors who wrote down that my cranial nerve exam was normal even with that and other really glaring abnormalities.
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