I don't know if there's anything I can do. But I will make a list and watch out for information for you. The list has already been started.
There is no proof that CCSVI treatment works. If this is something you want to try, please make sure you know as much as can be known about the possible risks/possible benefits of this.
I would need your name or handle, your general location & how far you could possibly travel for treatment, and your honest assessment of how at risk you are of dying while you wait for treatment.
If you've read here about Bridget Wehmeyer's death, then you know why I am doing this.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition