A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby Annbanan » Thu Aug 05, 2010 3:48 am

those stories are incredible! My parents were of the generation that said, 'Yes doctor' and trusted them to the very end. Non one had the nerve to question....CCSVI has changed all that....I had to change my family doctor because she gave me anxiety pills and suggested a psychiatrist! Good for us for taking responsibility for our own health and not depending on the health care system of whatever country you are from...because it seems up to this point they have done little to help us.
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Postby TMrox » Thu Aug 05, 2010 6:09 am

I used to be a yes doctor, whatever you say. But very quickly learned that not all docs are good. There are some who don't know their stuff and don't accept it.

I'm saying this because I just came back from seeing my GP. My GP is a star, but unfortunately he was sick today so I was seen by another doctor.

I requested to have a blood test to check my vitamin D levels. This doctor told me that there is no such blood test. What! I packed my things and said thank you very much I'll wait until my GP gets back.

Anyway, going back to the CCSVI issue, I really like the article that Dr Sclafani wrote. He says there:

The majority of patients with CCSVI appear to have multiple sclerosis (MS), and the majority of patients with MS have CCSVI ... ufficiency
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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