Alright, in an effort to be fair and balanced, an update in regards to CCSVI liberation ...
10 days later ...
Things are still happening daily as after effects to liberation.
1. She can now shave her legs in the shower without the fear of falling through the glass shower doors if she doesn't hold on to something or sit on the built in shower seats (I guess you could call them).
2. She can get dressed in the middle of the room without leaning on the bed or wall for support and put her bottom half dressings on.
3. She ran on a treadmill for the first time in almost a year yesterday - remember she runs outside a lot, but rarely on a treadmill for fear of losing her balance and stepping off the (whatever the thing in the middle of the treadmill that rotates is called) and falling over.
4. She sleeps completely through the night (almost to the point of being dead to the world). I was working on my thesis last night and she didn't even budge when I came in ... usually that would have prompted a bathroom visit.
4a. On that note, the bathroom visits are down SIGNIFICANTLY
4b. She didn't even know about these really (or maybe she did), but right after falling asleep she used to have night spasms, in her shoulder and legs ... those are gone completely.
and for the fair and balanced part:
We do feel her iliac vein has re-stenosed. Reasons: Her l'hermittes is only back on the left side of her LOW back - though it remains gone everywhere else (used to travel all the way down the back) ... (which if you believe that by occluding the iliac vein it forces leg blood to flow up through other sources draining into the lumbar veins and through the azygous system it makes sense). Other reasons we believe this is her left leg/foot color have returned (he is also going to check for a DVT as the potential cause of this) ... and she had SIGNIFICANT improvements in her left leg for a few days post procedure that have returned. Also the left is significantly colder than the right ...
Her right leg MS symptoms are ALL gone.
Her left leg MS AND May-Thurner symptoms are BETTER (thanks to opening the azygous) but the May-Thurner symptoms (leg pain/numbness) are not even as good as a few days after the procedure. Hence, belief ourselves and our doctor that stents are needed in the iliac.
Um, what else? Her heat sensitivity is slightly better (who can be sure under the oppressive heat on the eastern part of the US - but her ability to take HOT showers is back *and believe me I don't know how she stands the heat in there - I witnessed that pre-MS diagnosis when we were dating*).
I don't think I'm missing anything at this point that I've noticed or she has brought up ...
WE STILL CONSIDER IT A BLESSING TO HAVE THIS DONE IN THE US and NOT TRAVEL ABROAD. ESPECIALLY SINCE WE'RE GOING BACK IN FOR THE ILIAC/MAY-THURNER ISSUE. Especially since we didn't pay a dime out of pocket because it was all insurance covered and in-network (whatever that 'really' means).
Again, I can hypothesize (since the doctor said the same thing) ... a blocked azygous IN ADDITION to May-Thurner is bad news. The blood can get into the spinal area, but can't get back out easy ... luckily my wife is young and new to MS as this was caught. We're grateful to all who helped find this wonderful doctor, and perhaps we'll all meet soon!
Wishing you all continued improvements as well ... and to those going to him in the future, you're in great hands.
EDIT ... I forgot one ... and this is one I found odd (asked a few doctors about it privately BEFORE THE PROCEDURE - including Dr. Sclafani - and their answer was uncertain) and maybe other women can think about.
For A LONG TIME (almost since the time of her diagnosis) she hasn't gotten her period. I know the gonadal veins can drain through the azygous system ... but within 10 days of getting this procedure done, there's the monthly visitor. This MAY be a coincidence ... but often times there are no coincidences in life ...