A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby denisedani » Fri Jul 02, 2010 12:06 pm

CCSVI TRACKING [Please use date format MM/DD/YYYY]

Name (if want to give other than TIMS login name): denise
Male/Female: F
Age: 43
Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): SPMS
Lesion locations (most affected side, if known), number:
MS treatments: everything, Avonex...Chemotherapy, alternative medicine
MS symptoms before stenosis intervention: major walking problems
Number of relapses before intervention (if applicable):
EDSS before CCSVI intervention (self-assessed or physician-assessed?): 6.5
[To review EDSS rating, click the following link: ... scale.html ]
FSS before CCSVI intervention:
[To calculate FSS rating, click the following link: ]
MSIS before CCSVI intervention:
[To calculate MSIS rating , click the following link: ]
Are you using Inclined Bed Therapy I.B.T? (Y/N) no

Have you had testing (and possibly procedure) for blockage yet:yes
[Some patients may wish to start with a baseline report, if Y, continue with next section]


Date/location of testing/procedure: 15.6.10 Frankfurt
Type of venographic study: MRV
Type of procedure: balooning
Procedure/drug related symptoms:
[Repeat this section if there have been more than one procedure]

Number of relapses since first CCSVI intervention:
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
EDSS as of this update (self-assessed or physician-assessed?)
FSS as of this update:
MSIS as of this update: :
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Posts: 1
Joined: Sat Jun 26, 2010 3:00 pm


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