So very happy for you, you aren't the first non-diagnosed person to test positive for CCSVI and get treated. Good call, I think anyone with that level of stenosed veins would want to get fixed immediately. Did you do angio or stents or both? Please keep us posted on how you are doing. I remember when I first heard that nystagmus word, sounded like a death sentence but I was sitting on a hospital bed without the internet or a dictionary lol.
To echo gothic, yes this may be an intertwined condition, separate but running alongside with whatever the immunity is doing. Any surgery will tire you out just from the psychological aspect, let alone traveling a long ways to a foreign country. Rest easy, keep us posted on where you are at in the journey, good bad or otherwise...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap