This Is MS Multiple Sclerosis Community: Knowledge & Support

anybody around who had a significant better hand function after CCSVI treatment ?

thnx Bas

yes. last month pre op, my hands were getting much worse. my wrists felt like... i dont know, crippled or something. I was loosing my hands in space and all. this has subsided significantly and trust me when i say that this happened because of the operation. it s not like it vanished but it s better.

i d say that the most recent symptoms improved while oldies are still there 80 days post op. the most important improverment has to do with my brain always feeling like shit though. it s coming around. slowly but steady. if these mean that progression has been halted or sigbnificantly slowed down i dont know. too soon to tell.

if those are coincidences i just dont know either. all i know its that the placebo effect has nothing to do with it.

Hi Bas

I was liberated in April and I am continually noticing I can do things with my hands I could not do before. Delicate fiddly things that require a lot of care or co-ordination. Also the feeling in my finger tips is better and fine control of my hands is better.

I was doing some painting for my son last week which needed me to hang backwards out of a window while holding on with one hand. I had my other arm stretched out and round the end of a window to paint the frame while looking at my hand at an angle through the pain of glass. I was sometimes doing the same thing going under the window frame so I was working upside down.

All of the time I was painting the outside of the frame while looking at it from the inside through the glass so I had to mentally reverse the movements I was making with my hand.

I was also continually changing my grip on the brush as I changed from painting the bottom edge to the side of the frame and so on.

Before April I would not even have attempted anything like this. But this time I was doing so many things at once which needed fine hand control and balance and 3d awareness, whilst hanging on with one hand!

I actually kept at it for two days with only a couple of breaks a day. No problem, I was tired but not fatigued.

I don't think this is placebo either.

Best wishes.

Alan

I am speaking on behalf of my husband Joe. We both received angioplasty on July 9 in Alexandira, Egypt. On July 10, Joe could open his left hand fully and spread all fingers apart. This was the first time in almost a year that he could do this! Also, he can now brush his teeth with full control!

I started loosing the fine grip on my right hand just before Christmas last year. Also I couldn't stretch my hand out fully. My wrist fatigues too, but that's been several years now.

Within a day or so after my procedure, I could stretch my hand fully and I regained my fine grip. This remained for 6 weeks til I started to re-stenose again. Within a couple of hours after my second procedure, my hand opened out again. now I'm loosing the fine grip again and although I can't stretch my hand fully, I can stretch my little finger out!!

As one of the yet-to-be liberatees, this thread is inspiring me. I find it hard to play with my daughter's hair and pretty it up with braids and whatnot like the other girls. And my youngest is long out of them now, but oh I hated onesies on babies! Dang snaps on a wiggly baby. I do not consider my hands bad but I hadn't thought that they might improve, it is a nice thought.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Me too, and I may soon find out. Or not. Problems with buttons. But what would really impress me is if I could again fret a guitar.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

My right hand is weak. It;s hard for me to write and to type sometimes. and it's hard for me to hold the spoon or fork when I eat. I hope I'll get liberated soon and see some improvements.

Right hand almost entirely useless for me. The left one is starting to get quickly tired too and lots of coordination problems with the fingers.

I shall be "liberated" soon and will certainly report

Be well.

Before going in last year, there were just little odds and ends I was beginning to notice, that in and of themselves, wouldn't constitute a disabling symptom, not by a long shot, but nonetheless were becoming more noticeable. I've always been a very dexterous person, and love working with my hands, creating/building things, but had noticed that my fingers seemed to be losing their ability to feel things that were hot.

Very subtle but a wee bit alarming. (wee bit only). Like stuff on the stove that was hot, I could pick up and it didn't feel that hot. Reach to pick things up and would do it 3, 4 times in a row, constantly dropping things as if my hand didn't know they were there. This is very scary at work when you have say a 5 or 10 lb wrench in your hands, 80 feet up and there are people working on the ground beneath you. Even thinking about it gave me chills. I tried to compensate by always roping off my wrench if it was being used, or hooking it on to my harness. This of course would always result in thoughts of how in the heck can I expect to retire doing something when the very act of doing these things, dropping heavy tools and such could result in much harm to my fellow man?

Sometimes I would "test" the sensitivity in my hands and especially fingers by subjecting them to extremes either hot or cold. It was undeniable that they were losing something. Not like could mention it to neuro because I know it would warrant a shrug or two, maybe a notation on the chart and that's about it.


Anyways like I said, not exactly a disabling symptom but one more thing tossed into an increasingly overwhelming pile. This all seemed to rectify since my procedure last year, I barely if ever drop things anymore. Hot stuff feels hot, almost too hot, same with cold. Like it should.

Just one of those quirky little things I was very very happy to see gone, and at this point for good. Excellent question for the panel anyways.

Mark.

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap