A VERY interesting post ...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

A VERY interesting post ...

Postby CCSVIhusband » Sun Jul 25, 2010 12:03 pm

To give credit where credit's due, you can find this post and author in Dr. Sclafani's thread on page 185 (I believe).

I found it interesting, and wanted to post it again for all to read, who don't go into his thread often ...

Dr. S, could you weigh in on this? My laypersons eyes say this is clearly known and could have a connection to CCSVI. Direct from the NIH's National Institutes Neurological Disorders and Strokes.: NeuroArteriovenous Malformations and Other Vascular Lesions of the Central Nervous System Fact SheetSkip secondary menu. Although AVMs can develop in many different sites, those located in the brain or spinal cord—the two parts of the central nervous system—can have especially widespread effects on the body.
AVMs of the brain or spinal cord (neurological AVMs) are believed to affect approximately 300,000 Americans
AVMs also can cause a wide range of more specific neurological symptoms that vary from person to person, depending primarily upon the location of the AVM. Such symptoms may include muscle weakness or paralysis in one part of the body; a loss of coordination (ataxia) that can lead to such problems as gait disturbances; apraxia, or difficulties carrying out tasks that require planning; dizziness; visual disturbances such as a loss of part of the visual field; an inability to control eye movement; papilledema (swelling of a part of the optic nerve known as the optic disk); various problems using or understanding language (aphasia); abnormal sensations such as numbness, tingling, or spontaneous pain (paresthesia or dysesthesia); memory deficits; and mental confusion, hallucinations, or dementia.

Researchers have recently uncovered evidence that AVMs may also cause subtle learning or behavioral disorders in some people during their childhood or adolescence, long before more obvious symptoms become evident.
One of the more distinctive signs indicating the presence of an AVM is an auditory phenomenon called a bruit, coined from the French word meaning noise. (A sign is a physical effect observable by a physician, but not by a patient.) Doctors use this term to describe the rhythmic, whooshing sound caused by excessively rapid blood flow through the arteries and veins of an AVM. The sound is similar to that made by a torrent of water rushing through a narrow pipe. A bruit can sometimes become a symptom when it is especially severe. When audible to individuals, the bruit may compromise hearing, disturb sleep, or cause significant psychological distress.
Symptoms caused by AVMs can appear at any age, but because these abnormalities tend to result from a slow buildup of neurological damage over time they are most often noticed when people are in their twenties, thirties, or forties. If AVMs do not become symptomatic by the time people reach their late forties or early fifties, they tend to remain stable and rarely produce symptoms.
In women, pregnancy sometimes causes a sudden onset or worsening of symptoms, due to accompanying cardiovascular changes, especially increases in blood volume and blood pressure.



Well ... it seems the NIH understands this, why can't neurologists?
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Postby 1eye » Sun Jul 25, 2010 12:22 pm

Note that perhaps in an effort not to tread on too many neurologists' toes, no mention was made of MS. However, the description does sound like CCSVI for sure. I sure would like to have a few fewer of those symptoms. Does the NIH recommend a treatment?
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Postby cheerleader » Sun Jul 25, 2010 12:25 pm

Neurologists do know about intracranial AVMs, they are a differential for MS, and will show up on MRI


The problem comes when the vascular defect is extra cranial, and the typical MRI used to diagnose MS fails to reach this area. The jugular vein has been ignored in relation to brain health. This is what got Dr. Dake hooked...he couldn't believe the neck had not been studied in relation to brain health. Neither could Jeff nor I!

Just to clarify, AVMs are very different than what Dr. Zamboni has found. AVMs are tangles of arteries and veins, an abnormal collection of blood vessels. Very different than stenosis and reflux, although the resultant lack of proper drainage can create similar affects, like demyelination.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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