Hello, my wonderful friends.
I have so much to say but only a moment to steal here. I know I've already said it, but every single word from you is so deeply appreciated, and I sit here and talk to the screen and say more than I can ever write.
I would like to go into more detail, but the brief report is that in general there continues to be positive along with neutral results. I can see that another checkup/venogram at some point would be useful. I see "ten days" mentioned over and over and wonder if there is some natural physiological response that happens that could be investigated?
I am going to use a few of my limited minutes to try posting a couple of images. I'm not computer savvy!
If it works, great. If not, I'll try again when I can grab a few minutes. I don't know any details except the last image is probably not what you think.
Healing is so much more than a day procedure. Our bodies and our lives are complex and amazing. Having done this Liberation, I am amazed at what seems to be connected to proper blood flow. But having significant disability, I am also humbled by how much damage there can be to address.
I think that some of those before and after videos would make people think that angioplasty would have all of us heaving our wheelchairs and canes over the nearest cliff. If only that were true! It's a huge part of the picture, and I am a true believer, but be prepared for realism. I was honestly angry when one prominent CCSVI clinic staff person laughed at me when I asked about wheelchair access -- she implied I wouldn't need it afterward.
Well, I've had definitely some positive results, but I've used a wheelchair for eight years, and I still need my chair, and I think it's not right to give us the wrong impression!
I am so encouraged by my positive results, but this experience also shows me that a close, ongoing relationship with the vascular interventionist will be extremely important over time, as well as a supportive medical team.
As I said, healing is not a day procedure, and as this all is researched and explored and we all learn and heal, our knowledge will grow exponentially. I hope we can do this unfettered.
I am so happy to be part of this growth and part of this group.