I am soooo FRUSTRATED, angry and i am getting depressed... This is way too hard... I am alone in this. It takes hours to write up letters and then tire for the rest of the day... But people without this condition don't understand all it takes out of us to put things together...
I am feeling defeated
sorry, this is your tread and you should be getting support
You are not alone in this Vivavie. Keep doing what you can on a daily or even weekly basis. Don't try to do too much .
Be patient with the ones closest to you. If your like me you can forget to do this when your constantly dealing with painful stuff and then new painful stuff. I know the routine all too well.
If you have a spouse, parents, children, they know what you're going through (in so far as the pain they see on your face). Be patient with them. It's difficult to put into words how to console someone suffering like we are. I see how frustrated you are, me too. I experience the same frustration day in and day out.
I want you to know I'm thinking about you and that you've made me realize that I am spending too much time wallowing in it. I should be stronger for everyone who suffers like I do. You might have drawn on my strength not my frustration. My apologies.
My wife is so incredible I can't begin to express how grateful I am that God has put someone this soft and this sweet in my life. And no worries about sharing your frustrations with us in this thread I appreciate that very much and I hope that you find some comfort in knowing that you're not the only one frustrated. Like I said, I'm thinking about you and I know better things are right around the corner for us. Who knows, we may wake up in the morning to find CNN announcing the cure for this disease!
Also, if you need to bitch about stuff, I can be all ears too. No worries.
In the mean time, does anyone here want to suggest what in the world I should be telling or asking my GP? His office just called my wife, my wife just called me and I had to tell her to wait until I find out on here who it is I need our GP to refer me to. Is it an interventional radiologist? I am not an avid study of all things MS or CCSVI like most on here. Im just starting to get my feet under me, so to speak, and shake some of this depression and try and help my self if I can.