NEW!--MS-MRI Mich. conference--Haacke/Sclafani/Hubbard

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NEW!--MS-MRI Mich. conference--Haacke/Sclafani/Hubbard

Postby cheerleader » Tue Aug 10, 2010 5:59 pm

EXCELLENT presentations and powerpoints from doctors and patients--
Thanks to Robert for filming and uploading ... re=channel

the videos are in reverse order, first one was uploaded first, go from right to left....
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby garyak » Tue Aug 10, 2010 10:14 pm

Ty cheer , this is a must see video series - super educational.
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Postby Cece » Tue Aug 10, 2010 11:43 pm

Links edited out until the official version becomes available....

"I cannot rest til it's fixed" (drsclafani)
Last edited by Cece on Thu Aug 12, 2010 3:43 pm, edited 1 time in total.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby drbart » Wed Aug 11, 2010 12:18 am

garyak wrote:Ty cheer , this is a must see video series - super educational.

Excellent, beyond excellent. Hubbard was outstanding too, and I'm so glad he talked about the giant elephant in the room, which is WTF neurology is having such an allergic reaction to CCSVI.

This was also the first explanation I've seen of neurological improvement, not just relief of hypoxia.

(Someone should figure out a way of bypassing the YT 15m limit and paste these together..)
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Postby PCakes » Wed Aug 11, 2010 1:22 am

1:20 a.m. just finished watching .. faaaantastic!! a must see!.. all the info we all talk about everyday organized and presented by some of the best!! First thing to keep me up this late in years :) thank you!!

Morning now.. bit sleepy but invigorated and inspired...

The addition of Monte (profound apologies as I have misplaced his family name) was genius.. his comment to new concerns on the practice of tapping into the jugular for dialysis (sp) and what these patients may have been unknowingly exposed to was very interesting.

Dr Hubbard's sharing that in his attempts to obtain 'control' data he had scanned his wife and daughter only to discover that they also had venous issues was breathtaking.

The energy and excitement emanating from these doctors is contagious!!!
Last edited by PCakes on Wed Aug 11, 2010 8:34 am, edited 2 times in total.
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Postby sbr487 » Wed Aug 11, 2010 4:19 am

I am simply numbed hearing these great guys talk.

Its important to remind ourselves that we have some really great DRs and human beings on our side. Sometimes that might be indicator of which way the balance is going to tilt ...

Its also great to see our regular TIMSers getting a mention ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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Postby TMrox » Wed Aug 11, 2010 7:51 am

Thanks Cheer and Cece for fantastic links.

Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby garyak » Wed Aug 11, 2010 7:53 am

I also stayed up way too late but couldn't peel myself away . The docs were all great-everyone should watch these for sure.
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Postby Rokkit » Wed Aug 11, 2010 11:48 am

These videos are so great. I haven't heard Dr. Hubbard before, VERY impressive.
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Postby IHateMS » Wed Aug 11, 2010 1:23 pm

must watch

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Postby garyak » Wed Aug 11, 2010 6:09 pm

Rokkit wrote:These videos are so great. I haven't heard Dr. Hubbard before, VERY impressive.

I was tested at his clinic 3 weeks ago. The entire family was awesome as was the over-all experience.
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Postby prairiegirl » Wed Aug 11, 2010 7:48 pm

Great to see these videos-- thanks for posting them!
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Postby MrSuccess » Wed Aug 11, 2010 10:38 pm

working my way through the tape ... as time allows .

A transcription would be of benefit ..........

With all due respect for all CCSVI investigators .... I think we have found an excellent CCSVI spokesperson in Dr. Hubbard

I would have great confidence in Dr. Hubbard being the one speaking to the media on behalf of CCSVI . :idea:

We have several other outstanding CCSVI literate spokespersons .... but they lack MEDICAL credentials ....

I'm thinking Ashton Embery ...... and the Wheelchair KK ... Marc :!:

The CCSVI team is looking great . Everyone seems to be doing their part.

I think a little grass roots pressure might quicken those peer reviewed journals ..... to let OUR people take the witness stand ... :idea: And post a rebuttal..... ASAP

Anyone have their email address' ?

I am amazed at the growth in CCSVI investigation ....... and the growing numbers of pwMS getting CCSVI testing and treatment .......

Wow .

Mr. Success
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please post link for video #15

Postby hwebb » Wed Aug 11, 2010 11:05 pm

excellent viewing.

I particularly liked Dr Harvill's discussion of the regular "maintenance angioplasty" which dialysis patients undergo to keep their veins open (bear in mind, they have a special vein disorder - vein thickening- due to the trauma their veins have suffered). I suspect some CCSVI-ers may have to have regular maintenance angioplasty too, depending upon their vein calibre.

Could someone please post the link to video #15? I can't find it.

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Postby se1956 » Thu Aug 12, 2010 12:07 am

I think there should be a sticky with links to all videos in some logical order.

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