This Is MS Multiple Sclerosis Community: Knowledge & Support

EXCELLENT presentations and powerpoints from doctors and patients--
Thanks to Robert for filming and uploading

http://www.youtube.com/watch?v=77-ES0tk ... re=channel

the videos are in reverse order, first one was uploaded first, go from right to left....
enjoy!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Ty cheer , this is a must see video series - super educational.

Links edited out until the official version becomes available....

"I cannot rest til it's fixed" (drsclafani)

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

Excellent, beyond excellent. Hubbard was outstanding too, and I'm so glad he talked about the giant elephant in the room, which is WTF neurology is having such an allergic reaction to CCSVI.

This was also the first explanation I've seen of neurological improvement, not just relief of hypoxia.

(Someone should figure out a way of bypassing the YT 15m limit and paste these together..)

1:20 a.m. just finished watching .. faaaantastic!! a must see!.. all the info we all talk about everyday organized and presented by some of the best!! First thing to keep me up this late in years thank you!!

Morning now.. bit sleepy but invigorated and inspired...

The addition of Monte (profound apologies as I have misplaced his family name) was genius.. his comment to new concerns on the practice of tapping into the jugular for dialysis (sp) and what these patients may have been unknowingly exposed to was very interesting.

Dr Hubbard's sharing that in his attempts to obtain 'control' data he had scanned his wife and daughter only to discover that they also had venous issues was breathtaking.

The energy and excitement emanating from these doctors is contagious!!!

I am simply numbed hearing these great guys talk.

Its important to remind ourselves that we have some really great DRs and human beings on our side. Sometimes that might be indicator of which way the balance is going to tilt ...

Its also great to see our regular TIMSers getting a mention ...

_________________
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

Thanks Cheer and Cece for fantastic links.

Rox

_________________
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.

I also stayed up way too late but couldn't peel myself away . The docs were all great-everyone should watch these for sure.

These videos are so great. I haven't heard Dr. Hubbard before, VERY impressive.

must watch

thanks

I was tested at his clinic 3 weeks ago. The entire family was awesome as was the over-all experience.

Great to see these videos-- thanks for posting them!

working my way through the tape ... as time allows .

A transcription would be of benefit ..........

With all due respect for all CCSVI investigators .... I think we have found an excellent CCSVI spokesperson in Dr. Hubbard

I would have great confidence in Dr. Hubbard being the one speaking to the media on behalf of CCSVI .

We have several other outstanding CCSVI literate spokespersons .... but they lack MEDICAL credentials ....

I'm thinking Ashton Embery ...... and the Wheelchair KK ... Marc

The CCSVI team is looking great . Everyone seems to be doing their part.

I think a little grass roots pressure might quicken those peer reviewed journals ..... to let OUR people take the witness stand ... And post a rebuttal..... ASAP

Anyone have their email address' ?



I am amazed at the growth in CCSVI investigation ....... and the growing numbers of pwMS getting CCSVI testing and treatment .......


Wow .





Mr. Success

excellent viewing.

I particularly liked Dr Harvill's discussion of the regular "maintenance angioplasty" which dialysis patients undergo to keep their veins open (bear in mind, they have a special vein disorder - vein thickening- due to the trauma their veins have suffered). I suspect some CCSVI-ers may have to have regular maintenance angioplasty too, depending upon their vein calibre.

Could someone please post the link to video #15? I can't find it.

Helen

I think there should be a sticky with links to all videos in some logical order.

R.