Liberation Survey Part 2 - after three months

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Tick one of the following to describe your Improvement

Dramatic Improvement
7
22%
Moderate Improvement
12
38%
No Improvement
8
25%
Worse
5
16%
 
Total votes : 32

Liberation Survey Part 2 - after three months

Postby AMcG » Wed Aug 18, 2010 5:50 am

Could people who have had the treatment please fill this in as soon after three months as possible.
Last edited by AMcG on Tue Aug 24, 2010 10:00 am, edited 1 time in total.
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Postby AMcG » Sun Aug 22, 2010 4:39 am

Bump.

Only six votes so far, If you have been liberated please vote
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Postby Frank » Mon Aug 23, 2010 9:41 am

How should that be understood, as an improvement compared to
a)before liberation
b)further/ongoing improvements as comparted to results seen just after treatment

thx
--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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Postby AMcG » Mon Aug 23, 2010 9:43 am

I am assuming all improvements are compared to before liberation.
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Postby AMcG » Mon Aug 30, 2010 8:25 am

Bump.

Still only 17 votes. Please vote.
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Postby Chris1967 » Tue Aug 31, 2010 11:06 am

Just voted, thank you. My vote fell in the 'worse' catagory as you didnt have a waayyy f*c*ing worse catagory. Liberated in Bulgaria May 5, 2010.
I'm getting 're-liberated' at my local hospital tomorrow, Sept 1, 2010 by local cardiovascular surgeon.

Total cost for me and my family to fly to Sofia (business class, 3 of us), be liberated, celebrate, splurge and come home: $25,000.
Total cost at my local hospital tomorrow, $100 if I go right home afterward, $250 if I stay overnight or whatever. Thank you Blue Cross Blue Shield.
My vascular doctor, who is anti-stent, said I may need regular surgury! WTF!
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Postby AMcG » Sun Sep 05, 2010 4:35 pm

Really sorry to hear your results. Hope your second try is better. Glad to hear it is local.

I have just been to Poland for a checkup (4 months) and my stent is good with excellent flow (right side) but the other side is little better for the ballooning. I have had v. good results in terms of improved symptoms so I think I will wait for a while. I strongly suspect I have more improvements to come.

Please record your new intervention too. I hope it wasn't regular surgery that sounds a bit drastic to me.

To anyone else reading this. Please VOTE.
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Postby AMcG » Sun Sep 19, 2010 11:32 pm

Bump.
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Postby AMcG » Tue Sep 28, 2010 1:32 am

Bump. Any more votes?
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Postby Nasti » Tue Sep 28, 2010 2:12 pm

I will give an analytic answer.
Concerning my body symptoms, my feet get more stiff now than before. I feel awful in the second half of the day because of disc herniation and muscle pain in my shoulders (not connected to stenting).
Concerning my energy, it is double the amount it was before.
Conclusion: I feel great, but I still feel the symptoms.
So, what kind of an improvement would this be?? :)))
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Postby vivavie » Sun Oct 10, 2010 12:19 pm

bump

Am I the only curious?
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