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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Tick one of the following to describe your Improvement
Dramatic Improvement 22%  22%  [ 7 ]
Moderate Improvement 38%  38%  [ 12 ]
No Improvement 25%  25%  [ 8 ]
Worse 16%  16%  [ 5 ]
Total votes : 32
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AMcG
PostPosted: Wed Aug 18, 2010 5:50 am 
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Could people who have had the treatment please fill this in as soon after three months as possible.


Last edited by AMcG on Tue Aug 24, 2010 10:00 am, edited 1 time in total.

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AMcG
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PostPosted: Sun Aug 22, 2010 4:39 am 
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Bump.

Only six votes so far, If you have been liberated please vote
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Frank
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PostPosted: Mon Aug 23, 2010 9:41 am 
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How should that be understood, as an improvement compared to
a)before liberation
b)further/ongoing improvements as comparted to results seen just after treatment

thx
--Frank

_________________
Treatment: CCSVI both IJV ballooned 09/2010, No DMDs, Tysabri on hold after 24 Infusions, after LDN, ABX Wheldon Regime for 1 year.
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AMcG
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PostPosted: Mon Aug 23, 2010 9:43 am 
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I am assuming all improvements are compared to before liberation.
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AMcG
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PostPosted: Mon Aug 30, 2010 8:25 am 
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Bump.

Still only 17 votes. Please vote.
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Chris1967
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PostPosted: Tue Aug 31, 2010 11:06 am 
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Just voted, thank you. My vote fell in the 'worse' catagory as you didnt have a waayyy f*c*ing worse catagory. Liberated in Bulgaria May 5, 2010.
I'm getting 're-liberated' at my local hospital tomorrow, Sept 1, 2010 by local cardiovascular surgeon.

Total cost for me and my family to fly to Sofia (business class, 3 of us), be liberated, celebrate, splurge and come home: $25,000.
Total cost at my local hospital tomorrow, $100 if I go right home afterward, $250 if I stay overnight or whatever. Thank you Blue Cross Blue Shield.
My vascular doctor, who is anti-stent, said I may need regular surgury! WTF!
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AMcG
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PostPosted: Sun Sep 05, 2010 4:35 pm 
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Really sorry to hear your results. Hope your second try is better. Glad to hear it is local.

I have just been to Poland for a checkup (4 months) and my stent is good with excellent flow (right side) but the other side is little better for the ballooning. I have had v. good results in terms of improved symptoms so I think I will wait for a while. I strongly suspect I have more improvements to come.

Please record your new intervention too. I hope it wasn't regular surgery that sounds a bit drastic to me.

To anyone else reading this. Please VOTE.
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AMcG
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PostPosted: Sun Sep 19, 2010 11:32 pm 
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Bump.
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AMcG
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PostPosted: Tue Sep 28, 2010 1:32 am 
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Bump. Any more votes?
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Nasti
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PostPosted: Tue Sep 28, 2010 2:12 pm 
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I will give an analytic answer.
Concerning my body symptoms, my feet get more stiff now than before. I feel awful in the second half of the day because of disc herniation and muscle pain in my shoulders (not connected to stenting).
Concerning my energy, it is double the amount it was before.
Conclusion: I feel great, but I still feel the symptoms.
So, what kind of an improvement would this be?? :)))
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vivavie
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PostPosted: Sun Oct 10, 2010 12:19 pm 
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Location: QC, Canada
bump

Am I the only curious?
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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