Twins and CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Twins and CCSVI

Postby monik_77 » Sun Sep 05, 2010 1:10 pm

What happen in identical twins diagnosed both or only one with MS?? They have also the same venous malformations?? In the same localizations??? or not??
I think that should be interest to analyse this type of people with the goal to understand better if it is a congetinal problem.
What do you think?? any experience??

Cheers,

Monik
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Postby welshman » Sun Sep 05, 2010 6:41 pm

There's a blog posted on CCSVI Locator from a lady who's two twin brothers were recently treated - both have MS - and although it's not mentioned if the brothers are "identical" it is interesting to read that the blockages were similar although MS symptoms were different ????

Go to -

http://ccsvi-ms.ning.com/profiles/blogs ... ns-learned

The blog is not "just about twins" but it covers some very interesting points relating to the CCSVI treatment and how it is viewed / not viewed (?) in Canada. I thought it was good anytway !!!
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Postby CureIous » Sun Sep 05, 2010 9:59 pm

As I reported on a visit to my doc, one of his part time assistants had twin girls, both in their 30's, one with MS, the other without, but beginning to exhibit the familiar "opening salvo" of symptoms.

She of course has all the info needed to move forward with pursuing the CCSVI angle. I sure would like to find out how their testing goes. If I hear anything further will surely report back. Not sure if it would be any kind of slam dunk by testing twins with MS, but would be interesting to find out, especially if both have MS and both have CCSVI, or maybe 1 with and 1 without which would be even more curiouser...

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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