Boa mtf! I am very happy for you. And you were treated at home! Was it covered by the government?
I have watched my procedure videos a couple of dozen times, and wonder at why they were satisfied with the result. There is no doubt that I felt fantastic after the procedure, but after a couple of days, I knew that I was re-stenosing. There are all kinds 0f "jets" into what I presume are collaterals. I saw turbulence in my jugulars after the ballooning, and the aforementioned jets off the azygous, which they declared to be "okay, but has a bend in it". I think that one stenosis leads to another, and if something like the iliac vein is causing upstream problems in the azygous that lends to jugular, dural sinus, etc. problems. What is being missed? Why did mtf get 20 minutes in Poland, and 3.5 hours in Lisbon?
I was in mtf's cohort, and there were six of us done that day. My turn took about 50 minutes, another was about 45 minutes. The other fellow in my room was 25 minutes, mtf was 20, and I don't know about the other two. I had an e-mail from the only stent recipient (who was pushing her empty wheel chair the day after), and she reports that she is "very well". The fellow that had a 25 minute job has returned to baseline, and is clamouring for stents now.
I have been thinking of starting a thread to track clinics and outcomes, but I am pretty brain-dead. I think it would be useful though. It costs a lot of money to fly to Poland and have the treatment. There is a "warranty" - in that my second round will be much less money, and I was donated a flight, but I wonder if my attention would be better directed at a clinic that does check the iliac vein, and takes their time in looking for further problems. I have wondered if all of the international media attention has imparted a "super star" mentality, and they are gliding on their reputation.
Note that I am not knocking down Euromedic in any way, I just wonder at these things. I am going back, and will pay more money because I know what I can feel like. I don't know if it will last the second time either. I was thrilled with my first outcome, but I am back to baseline too. I don't want a stent, personally. I believe that it is bacteria, virus or parasite that cause the stenoses, and the problem will recur. My hope in the second procedure is for a longer relief while I pursue the chronic infection angle.
Sorry to hi-jack, mtf. I'm very happy that you got another treatment, and felt that flow in your neck. That is great. Maybe I'll drop in on the Professor Doctor while I am in Europe next month. And you too! My wife is a citizen of Portugal, so maybe I can get a deal. Laugh.
Health and happiness!
My name is not really Johnson. MSed up since 1993