What is your opinion?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

What do you think about having the Liberation treatment?

I want to have it as soon as I can.
26
81%
I'm going to wait until it is proven to be safe and effective.
5
16%
I don't want to have it at all.
1
3%
 
Total votes : 32

What is your opinion?

Postby David1949 » Wed Sep 15, 2010 2:27 pm

We've heard from many "medical experts" that we shouldn't get Liberation treatment because it is not proven, that it doesn't work and that it's just too dangerous. Well now let's get the opinion of people who deal with MS every single day...us, the people who are afflicted by it.
David1949
Family Elder
 
Posts: 635
Joined: Mon Aug 23, 2010 3:00 pm

Advertisement

Postby elyse_peace » Wed Sep 15, 2010 3:20 pm

I am 60 years old with chronic progression, getting increasingly worse over the past 5 years.
If I do nothing, things will absolutely continue to deteriorate. If I do something (Liberation treatment), problems should at least stop accruing, and I may even realize some relief.
User avatar
elyse_peace
Family Elder
 
Posts: 173
Joined: Thu Dec 31, 2009 4:00 pm
Location: Putnam, NY

Postby Johnson » Wed Sep 15, 2010 3:28 pm

I voted that I wanted to have it done as soon as possible, though I had it in June, and I am going for Round 2 in 3 weeks.

It works (at least, it did for me), although I did re-stenose (IJVs). My hope is that second time holds better.
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Postby David1949 » Wed Sep 15, 2010 3:55 pm

elyse_peace wrote:I am 60 years old with chronic progression, getting increasingly worse over the past 5 years.
If I do nothing, things will absolutely continue to deteriorate. If I do something (Liberation treatment), problems should at least stop accruing, and I may even realize some relief.


I'm with you.
David1949
Family Elder
 
Posts: 635
Joined: Mon Aug 23, 2010 3:00 pm

Postby Cece » Wed Sep 15, 2010 6:30 pm

Angioplasty is already considered safe. It's the effective part that needs proving.
Cece
Family Elder
 
Posts: 8990
Joined: Mon Jan 04, 2010 4:00 pm

Postby bigfoot14 » Thu Sep 16, 2010 7:00 am

Again I'm voting for my wife

we are on a couple of waiting lists already and if some of the clinics in the Chicago area get approved we will get done sooner
User avatar
bigfoot14
Family Elder
 
Posts: 110
Joined: Mon Nov 30, 2009 4:00 pm
Location: State of confusion (Illinois)

Postby LivabirdsHubbie » Thu Sep 16, 2010 10:44 am

I too am voting for my wife...
She has had it once in Poland, had good results at first, but most gone, we think it is due to them not looking at the azygos vein, and as she is PPMS, this is very important

Off to Bulgaria October 6th :lol:
User avatar
LivabirdsHubbie
Family Member
 
Posts: 91
Joined: Thu Jul 08, 2010 3:00 pm
Location: Northampton UK

Postby lucky125 » Thu Sep 16, 2010 10:51 am

I've done it twice and won't hesitate to go back for a third time if I begin restenosing again.

I have been RR for 20 years. I respond very well to this treatment. It is very real for me, and is better than any drug I've ever been on. And I've been on almost all of them!
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
User avatar
lucky125
Family Elder
 
Posts: 173
Joined: Wed Dec 02, 2009 4:00 pm
Location: USA


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users