I was going to say, this topic doesn't have the weight of law. But I have long thought, there should be something like this. Not a brain bank, though not long ago I would have said brain bank, but now what is needed is some way to donate whole bodies to CCSVI or just CVI researchers.
I guess the problem with that is, the returns diminish as long as you keep getting closer to knowing what's going on. Imagining something like that for cancer, there might be a surfeit of participants for a long time, but perhaps I've been fooling myself. Perhaps there is just no great demand by researchers; it would be nice to have a way to donate to appropriate uses. I guess once you're dead it doesn't matter, but I wouldn't want to be just propping up the fertilizer business. Some uses of bodies are better than that: for example I understand if you pay the freight you can assure yourself of a spot in the Body Farm.
Another objection is that you might just be giving funeral directors permission to sell whatever they can snag from your body (I hear knees and dura matter from (hopefully healthy) skulls is popular these days). Maybe there should be a way to specify "no other uses" and have a standard bunch of check-boxes, which might include broad categories like "autopsy", "medical school", "CCSVI research", "circulatory system research", "Body Farm" (if you live in Tennessee), etc. So nobody can use it for any purpose unless that box is checked. You could put an extra box for priority numbers if there were many possibilities. In fact I think I'll make up my own "no other uses" card and start carrying it. That way I can be *very* specific.
There could be a standard form that you fill out say at the estate lawyer's office, that has the above; perhaps in more detail. I guess the bottom line is that it's completely an honour system, but the more you have wishes, the better it is that you write them down and sign them.
Oh dear. Go back to your survey. I didn't intend that this distract the people the original posters were looking for.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience