CCSVI and CCVBP

[fee001]

Costumenastional,

Thanx

Fiona

[uprightdoc]

Dr. Flanagan I haven't posted in a while Just thought I would ask if any of patients you have treated have dealt with tinnitus? It seems to be a new synptom I'm dealing with. Sometimes it gets hard to tune it out but I try to ignore it.

Hi Coach,
Tinnitus is a very common complaint. The vestibulochoclear (accoustic) cranial nerve number 8 is susceptible to shear stresses and strains as it passes through the internal accoustic (ear) canal in the posterior fossa of the cranial vault beneath the tentorium cerebelli. Head tilts and twists and upper cervical misalignments strain the contains inside the cranial vault such as blood vessels and cranial nerves. They can also effect blood flow to the accoustic nerve.

[uprightdoc]

... there is an area at the bottom of my neck slightly to the left, only slightly is very sore, in your opinion what does that indicate.

It is probably the trapezius muscle. Unfortunately, I am getting your history backwards in bits and pieces. Nonetheless, you appear to have musculoskeletal complaints similar to Bi syndromes. In chronic Bi syndromes it is often necessary to prune away the branches before digging into the roots of the problem. It is far too involved to go into here but, as I have mentioned previously, certain types of autoimmune inflammatory connective tissue and other rheumatological disorders can mimic neurodegenerative diseases such as MS because of their impact on the spine. Likewise, misalignments of the spine can cause many different types of rheumatological complaints.

[uprightdoc]

... recently my right arm especially my hand lost surface feeling. I first noticed it when i was sitting sideways on my couch, with my elbow resting on the back cushions slightly below shoulder level with my shoulder slightly raised/pushed in from my arm ... any ideas about anything? maybe pinched nerve?

The thoracic outlets are series of bone and connective tissue tunnels between the neck, ribcage and arm. The tunnels are filled with nerves and blood vessels of the arm and hand. You are deforming the outlets on the left and right side by the way you are leaning on the couch. You are tensioning (stretching) one side and compressing the other. The outlets can handle temporary deformation for awhile. They were designed for it to accomodate motion. But if you do it everyday for extended periods of time you will cause chronic and eventually permanent neurovascular problems.

[uprightdoc]

Well doctor came today booked me for a kidney scan. I did stand my ground, she wanted to refer me to Neuro to access free physio, she had already prepared letter, but I had to decline, I cannot enter a system I disagree with, I just cant do it, it goes against all I believe.

We had to agree to disagree on ms diagnosis, Even though she believes I have it, I told her in my opinion I havent.

I like her she is a nice Irish lady and only wants whats best for me, but I cant go with it I'm affraid.

So onward I go, determined and on my lonesome, well with a bit of help from others, I am sticking with the team I already have, because sooner or later we will win. Fiona

I know and like some Irish people myself and despite their ferverant faith they tend to be a superstitious lot. But why does the doctor believe you have MS? Do you have two or more supratentorial, periventricular, perivenous lesions, remissions and excerbations of optic neuritis, weakness or sensory symptoms in the extremities etc?

[fee001]

Uprightdoc,

Legs are defunked at the mo. Anyway she rang me a while back and said I dont have to see professor continescu (neuro) as we dont agree on diagnosis and can refer me to physio direct, so that is good news eh! I just didnt want to be an ms statistic.


Fiona

[fee001]

Uprightdoc,

Thursday I saw at my house a Neuro Physiotherapist called Volker, because my spinal cord is wrong he wants me to be referred to a Consultant Dr in Rehabilitation tone/spacticity management, Volker is going to make Dr Haboobi aware that I am adverse against the "ms" word. In an ideal world he would have me admitted. I have since told him that will not be a problem this end.

Although I am sore from treatment, its a happy sore.

This is what I have always wanted, not to be seen as an ms statistic, but just as ME.

So watch this space eh!


Fiona

[civickiller]

i found my first mri's from June '06 when i was diagnosed

first time looking at it, i didnt notice the head tilt but now i do




compared with ucc xrays



i just got mried today but the images look nothing like the '06 images, cant even make out the mri's from

opinion please Dr. F

[uprightdoc]

Hello Civic,
It looks like you have a head tilt. Other than that the images are incomplete, distorted and grainy. I can't tell anything from the lateral cervical x-ray. I need your other upper cervical x-rays as well.

[dc10]

Hello Doctor,
I hope its okay if i ask you a question please, ill be as brief as possible:

I have had Secondary Progressive MS for 9 years now, last year was diagnosed with CCSVI- both IJVs and Azygous, which were balloon dilated.
After 6 weeks i restonoses so in May this year was re-ballooned.

After reading this thread i have looked into Upper cervical chiropractic treatment.
I live in the north of Enbgland, UK.
I can only locate one Upper cervivcal chiropractor but is in London so would be unable to go there.

However, there are many conventional Chiropractors local to me.
I have called a few and some have said they treat the upper cervical area.

One said they use an 'Adjuster' and another uses a 'toggle recoil'
are either of these devices suitable for upper cervical adju8stment?

I was hoping you would be kind enough to let me know an0ything i should ensure the chiropractor uses for the upper cervical adjustments?
or any additional areas on the body are advised to check/adjust in conjuction with the upper cervical?

- my symptoms are only mobility and bladder - i have an EDSS scale of 6.0

thank you

[uprightdoc]

Hello dc10

A fellow UK TiMS member found the Yeovil clinic, which is in Somerest. The doctors all have terrific backgrounds and the clinic should be an excellent alternative. In particular, Dr. Antoinette Young does craniopathy and has taken post graduate course in neurology. Another doctor does applied kinesiology (AK). AK does a lot of manual muscle testing and treatment along with craniopathy and pelvic blocking which can be very helpful if applied appropriately. It also use meridian therapy and nutrition based on analysis of interacting systems.

The link below is to the office website.

http://www.yeovilchiropractic.co.uk/ind ... iog_ayoung

Let me know if it is close enough to you.

Dr. F

[dc10]

Thank you Dr F,

Unfortunately Somerset is the other side of the country from me, so would be unable to go there.

Do you have any thoughts on this please:

there are many conventional Chiropractors local to me.

I have called a few and some have said they treat the upper cervical area.

One said they use an 'Adjuster' and another uses a 'toggle recoil'
are either of these devices suitable for upper cervical adju8stment?

I was hoping you would be kind enough to let me know an0ything i should ensure the chiropractor uses for the upper cervical adjustments?
or any additional areas on the body are advised to check/adjust in conjuction with the upper cervical?

[NZer1]

The Missed Measure of Man
Posted on September 12, 2011 by uprightdoctor

http://uprightdoctor.wordpress.com/2011 ... -of-man-2/

Enjoy and Thank You Dr,
Regards Nigel

[uprightdoc]

Hello dc10,

Toggle recoil is a good method but it depends on the quality of the specific x-rays used, and the experience and skills of the doctor.

What you can also do is get the names and websites of facilities in your area and let me check them out to see if I can determine which ones might be more appropriate for your condition. If you are interested then it would be further helpful if I knew a little more about the particulars of your condition.

[uprightdoc]

Your welcome Nigel. It is time to get physical anthropologists involved in studying forensic evidence. Past and current brain scans can also be used to study the design, layout, dimensions and capacity of the posterior fossa, as well as the angle of the base of the skull and the clivo-axial angle of the upper cervical spine.