CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jan 14, 2012 5:50 am

blossom wrote:...hope all is well. you have not been heard from lately.

i have a question. with my cervical problems that i hope to get corrected they can cause every symptom i have. but i have not read it can cause heat intolerence. can it? i know it will help with the blood flow and csf flow as you said. some that got ccsvi done it helped that. as you know i was not one of them...
i know we don't know the results until after-if any improvement. but i was wondering your thoughts about the heat intolerence...


Hi Blossom,

Things have been challenging lately to say the least, but many new doors have opened.

As for the heat intolerance I tend to suspect that it caused by irritation of the autonomic nervous system, especially the hypothalamus. It can occur as a result of compression from increased CSF volume in the cisterns or due to decrease in blood flow through the vertebral-basilar arteries.
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Re: CCSVI and CCVBP

Postby HappyPoet » Sat Jan 14, 2012 6:02 am

Hi Dr. Flanagan,

So glad you posted today -- was starting to worry!

Enjoy your month down south; perhaps when you return, the Adirondacks will have some snow to welcome you home.

Wishing you safe travels.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jan 14, 2012 7:34 am

coach wrote:I had upright mri yesterday. My pcp will get the report later. Since we were in Atlanta we picked up my records from Emory. According to their records I have bone spurs in the cervical spine and crvical stenosis. Could this be part of the reason I seem to be declining as well as the lumbar stenosis? The report said multilevel degerenative changes in cervical spine with the worse being at the C4-C5 level where there is moderate to severe neural foraminal stenosis. Also patchy T2 signal abnormalties throughout the cervical cord consistent with demyelination in the setting of multiple sclerosis. Of course all the other info was about ms findings. Just getting tired and worn out. Looks like I'm in the same boat as blossom. Guess I can enjoy the company.


Hi Coach,
The degeneration in your spine called spondylosis and stensosis can definitely be the cause of your decline, not to mention MS in my opinion. You are definitely in the same boat as Blossom and many others for that matter. Having stenosis in the low back compounds the problems in the spine and cord. I think its worth trying to surgically clean up some cases of MS that are associated with MS such as Blossom. While there is no guaruntee that it will improve every case we won't know how effective surgery is until we try. The technology is here now and it is safer and better than ever. The problem is that the surgeons don't see the connection yet.
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Re: CCSVI and CCVBP

Postby uprightdoc » Sat Jan 14, 2012 7:48 am

Thanks Poet,
I could use some snow to play with when I get back. I just got a new girly-girly TORO 1800 electric snow blower that's awesome. It's quiet and light and the power and throwing distance are incredible.
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Re: CCSVI and CCVBP

Postby uprightdoc » Tue Jan 17, 2012 4:46 am

Blossom,
I checked out the Flexiciser. While it's a good piece of equipment for cardiovascular exercise and patients with physical limitations, it isn't very effective for functional rehab or strength development for your particular case. If you wish we can discuss your case further by email to go over specifics.
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Re: CCSVI and CCVBP

Postby blossom » Tue Jan 17, 2012 7:42 pm

hi dr. flanagan, thanks for checking it out. i will be e-mailing. the flexiciser will arrive thurs. but, i have 30 days to return. but must pay shipping. i am sitting here getting worse and i was at least hoping to keep joints flexible maybe help bladder muscles core muscles get the lymph draining better and help swelling feet and circulation. this also has a resistance mode. but, your suggestions are always welcome.

you still have my full spine x-rays. i know my spine is a train wreck. do i have stenosis or possible surgical fixes anywhere besides the cervical?

also, i had asked your opinion about femoral nerve damage. you may have answered but not sure. after coming out of angioplasty with the numb left leg "in 20 yrs. i never had numbness anywhere" until then. that was aug. 2, 2010. even though i got not much of a response from dr. englander and dr. sisken other than a vague kinda look and an answer kinda like oh that should clear up. they pretty much brushed it off. even when i call them later. but it has gotten worse and also spread across into the private area into the r. leg. the pain is getting bad and it's screwing with what strength i have. i have never had to take any pain meds. stronger than an asparin but this has me frazzled. i can't take this pain and hurtful numbness.--you understand neurology--could the femoral vein getting injured be kind of an rsd effect? or have you ever heard of this? have you any ideas or knowledge of stopping this or fixing it? this was no casual decline as the past 20 yrs. it was instant. i sure did not need this on top of everything else. also, when i do get a surgeon to work on things it complicates things because say i do see good results in ways--spine surgery isn't gonna clear up an injured femoral nerve. like i needed this. i am very anxious to get your input. i've usually been able to handle a lot. " i might take a private fit" --but this is putting me much on the edge.
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Re: CCSVI and CCVBP

Postby blossom » Tue Jan 17, 2012 7:57 pm

hi again dr. flanagan, the question you answered for me concerning heat intolerence. i'm takeing it that getting the pressure off and having better csf flow and blood flow--may but no guarantees help this. correct?
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Jan 18, 2012 10:24 pm

Blossom,
The Flexerciser should be good for cardiovascular fitness so it a good option for that purpose.

The femoral nerve can get irritated by the iliopsoas hip flexor muscle which in the low back. It can also get irritated as it exits the pelvis beneath the inguinal ligament. Your muscles should be tested to determine the cause. You may have a low back problem which I discussed with you previously.

Better blood and CSF flow in the brain should help the heat intolerance.
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Re: CCSVI and CCVBP

Postby NZer1 » Tue Jan 24, 2012 12:55 pm

Spinal Alignment in Multiple Sclerosis
http://us1.campaign-archive2.com/?u=646 ... 34c092eb5b

At The Essential Health Clinic we are fortunate in having a multidisciplinary team who have been involved in managing patients with Multiple Sclerosis. This has involved the use of nutrition, supplementation, immune modulators such as LDN and more recently investigation and treatment for venous hypertension associated with CCSVI. We have also become aware of the importance of spinal alignment in some patients with MS through the work of Mr Tom Craig, a registered physiotherapist who works independently from our clinic.

Mr Craig explains “Physiotherapists, osteopaths and chiropractors have been aware of the subtle therapeutic effects of gentle neck and spinal manipulation. These improvements are often only temporary as the body has a tendency to revert to the compromised position after manipulation so requiring ongoing treatment. Experienced holistic dental practitioners also have been aware that cranio-mandibular influences and compromised jaw occlusion can influence balance, hearing, vision and gait. In many cases, the fitting of a temporary bite repositioning appliance results in a symptomatic improvement. Dental, orthopaedic or orthodontic treatment may provide a more lasting solution to alignment problems than manipulation of the spine.


It is critical for the body to be structurally aligned in order to attain and maintain health. Structural alignment means the head, neck, lower jaw and dental occlusion should align with the vertebrae, pelvis and extremities. If alignment or tone of the body structures ( skeletal, muscular, vascular and connective tissue) is not optimal or symmetric, other structures will compensate for this imbalance and eventually fall out of alignment as well.

Compromised movement patterns and poor posture will also result in structural misalignment.


Structural imbalance can be caused if the head improperly rests on the first cervical vertebra, triggering an incorrect twisting and rotation of the segments of the spine. This imbalance can start a process of vascular and lymphatic compromise which may ultimately lead to structural degeneration at the tissue and cellular level.

Tom Craig is a very experienced multi disciplinary physiotherapist who can assess structural misalignment issues and possible intrinsic links to CCSVI. The assessment usually lasts approximately 90 minutes. Further referral can be organised e.g. holistic dental practitioner. A full assessment for spinal alignment costs £175 and can be booked by contacting the clinic on 0800 027 4969.

The Essential Health Clinic Team
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Re: CCSVI and CCVBP

Postby civickiller » Tue Jan 24, 2012 6:27 pm

i came across this for people here in the US for those looking for an upright mri
sorry if this has already been posted

http://finance.groups.yahoo.com/group/FONAR/message/6
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Jan 25, 2012 4:05 am

There are doctors in podiatry who maintain that upper cervical misalignments, dental malocclussions and TMJ problems are due to pronated (flat) feet.

http://www.positivehealth.com/article/bodywork/malocclusions-linked-to-abnormal-foot-motion

Similarly there are doctors in chiropractic who maintain that the lower spine, pelvis and sacrum (the base of the spine) are the root cause of misalignments and deformation of the upper spine.

It takes significant training in orthopedics and neurology to know the difference.
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Re: CCSVI and CCVBP

Postby uprightdoc » Wed Jan 25, 2012 4:21 am

Here is some more information on using foot orthotics to correct TMJ and many other orthopedic and neurological conditions.

http://www.back2feet.net/index.htm
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Re: CCSVI and CCVBP

Postby coach » Thu Jan 26, 2012 12:14 pm

I've had MRIs of my cervical, thoracic, and lumbr regions of the spine. Cervical showed a herniated disc at the C4-C5 level (I think) lumbar a bulging disc at the L4-L5 some areas of spinal stenosis in both the lumbar and cervical spine, some spondylosis and bone spurs. Local neurolosurgeon would treat bulging disc but said the herniated cervical cervical disc was nothing to worry about. It doesn't cause me a lot of pain just the naging type. Nerologist just offered pain meds which do help but try to limit my use of them. Just use on bad days. Had an episode yesterday where I had trouble with my legs. None of the MDs have commented on a misalignment of the atlas. So I'm a little confused. Thinking about getting an opinion from the Bonati Spine Institute. I've had the pleasure of talking with Blossom and she said that MS doesn't exclude one from surgery at the Bonati Clinic. I understand it may not help me much but then again it may help some. Chiari was ruled out. Still confused about the voice change. Need to see an ENT doc to rule out anything with vocal cords.
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Re: CCSVI and CCVBP

Postby uprightdoc » Fri Jan 27, 2012 3:12 am

Hi Coach,
Just because none of the medical doctors you have seen didn't make any comments about misalignment in your upper cervical spine doesn't mean you don't have misalignment. I just sent a rare case to an upright MRI study that was done near Albany, NY last weekend. The patient had been seen by many doctors including Mayo clinic and National Institute of Health and no one commented on the misalignment of his cervical spine except that he had some erosion and deformation of the odontoid process of C2. In addition to the erosion and deformation of C2 he also had significant misalignment that even a novice could see. Dr. Scott Rosa, who did the study said it was the most dramatic case of poor blood and CSF flow he has seen yet. It was also the most dramatic change in blood and CSF flow after correction of the upper cervical spine. His case also supports my theory of upper cervical misalignments and spondylosis causing increased CSF volume, backjets and turbulance in the cisterns, which impact the brainstem and pituitary gland (sella turcica). Dr. Harshfield is reviewing the case and will have a specialist neuroradiologist review the case as well.

I have seen your upper cervical spine Coach and you definitely have misalignment. Considering the amount of deformation in your cervical spine, I find it hard to believe that you don't have a Chiari 1.
Last edited by uprightdoc on Fri Jan 27, 2012 8:52 am, edited 1 time in total.
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Re: CCSVI and CCVBP

Postby coach » Fri Jan 27, 2012 6:42 am

I've read your post Dr. Flanagan. I think I have so many of the symptoms of chiari but since there is no MRI evidence of it I guess that's where we are. I thought the upright MRI might show something. I think it would be a good idea to get my atlas back to it's correct posiition. I'm geting a reputation of being in disagreement with the professionals. Not quite sure what to do next. Guess I'll adress the spine issues and go from there.
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