I think Boopieup has left the building as far as this thread is concerned. She felt the need to express her feelings about the procedure and its results. She was in much better shape before the procedure than she is now. Is this due to the passage of time in which she would have been progressing anyway? Or is this due to some damage done during the procedure? Or is it due to the stress involved in going to a hospital, getting catheterized and having 4 bladder infections since April? What role does diet and exercise play in post-liberation results? Or..did the IR miss something critical like a valve that was being held open with the catheter thus showing no lack of flow? Are there other veins associated with CCSVI that aren't being addressed? What could explain the very positive week of improvements followed by a screaming headache and then relapse?
There are many questions this early in CCSVI and people like Boopieup have no energy to ponder them. My time is taken up with caretaker duties and work. It was nice to have hope for a while, but in our case I think the ship has sailed. She is not willing to travel or spend the mental energy to think about all the "what ifs." MS has ruined our lives. Why should she spend what few moments of mental clarity that she still has thinking about medical theories which have not panned out for her. So she plays Farmville 24/7 to forget her troubles. I don't blame her. Since September I have been without a compass to guide me. We just live day to day and try to deal with whatever life dishes out (like bladder infections, incontinence, weakness, spasms, constipation, PMS). Not a lot of fun, but the reality for lots of PPMSers and their caretakers. Even so, she is still thankful for the little things like being able to see (when it is still early in the morning) or the occasional "exercise" (for those who don't know -- go back and read her early posts
I came to this forum in Sept of last year in search of a little support for my sorry ass. I found a lot more. I found a little refuge of hope based on lots of people's experiences and a lot of interesting science. Even though it has not been of any benefit to us I can say it is a lot more sound than the other crap we were sold on through the years. I think very highly of the people on this board, especially those who were there at the beginning doing the research. And Dr. Sclafani, who is working on being the patron saint of CCSVI. I hope you all understand if Boopieup or I are not as responsive to questions and posts on here as we have been in the past. I wish the best for those just going into this for the first time. Maybe you can benefit from our doctors gaining experience on us (we were our IR's 3rd CCSVI case). Thanks for reading this long post.