scorpion wrote:How in the world did this post become about CCSVI? This poor lady is in the hospital suffering from PML and there is concern that her CCSVI has not been treated? Good god. Positve thoughts your way Angela.
cheerleader wrote:scorpion wrote:How in the world did this post become about CCSVI? This poor lady is in the hospital suffering from PML and there is concern that her CCSVI has not been treated? Good god. Positve thoughts your way Angela.
Yes, God is good. This is posted because many of us know Angela from her volunteer work with Flowers4MS. She has translated Dr. Zamboni's research and interviews for us, since she is Italian. She was diagnosed with CCSVI last summer by Dr. Zamboni, and speaks of it on YouTube in Italian and English. If you do not know her, it is of no consequence to the rest of us. I am updating a very close and committed community of friends, scorpion. Please let us be,
She is currently doing well and is in a good mood. She is confident that she will be OK. She is not thinking too far ahead, but is taking things a day at a time. She continues to find ways to make herself happy. She has had 3 plasma exchanges so far and they all went well, although the central line catheter continues to cause pain. So far, 92% of the drug has been removed from her system. After 5 treatments, 98% of the drug should be gone. Her next treatments are on Monday and Tuesday. If everything goes well, she may get out of the hospital later next week, but we will be back and forth for additional testing, like an MRI to check the inflammation in the brain.
She has been experiencing strong electrical shock pain in her head, but has been refusing to take additional drugs for the pain. She has also been quite tired, since sleeping in a hospital is never easy. This makes her feel weaker, but she is still trying to walk and use her arm weights, she just can’t do as much as she would like to. Even is she has some blurry vision, it can’t be that bad, because she keeps commenting on the cute doctors…
Hi, this is Keith. I just wanted to provide an update on how Angela has been doing. Things have been fairly stable this past week. The left side of her body (mouth, leg and arm) remains weak and her left arm has been losing coordination. Her symptoms are noticeably different than a few weeks ago, but not much worse this week.
She had an MRI yesterday and preliminary reports say there was no change from the last one. This is not necessarily a good thing since we did expect to see some new inflammation as a sign the IRIS attack had begun. This immune system response is supposed to help fight the virus, before they begin steroids. Her doctor will review the MRI himself and let us know next week what he reccomends.
Thanks again to everyone who has been sending their support. The love of all of her friends is what keeps Angela strong.
Users browsing this forum: No registered users