diagnosed - MRV images added, page 5&6!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Interrupted » Thu Nov 18, 2010 11:11 am

Cece wrote:Most of my symptoms align with the things that seem to respond well to CCSVI venoplasty (severe fatigue, cogfog, vision clarity, weakness).


I thought that too, lol :roll: But I really hope that because you've done such solid groundwork identifying the problems before yours that they'll have everything covered and you get a whole better result. You totally deserve it! :D
28/07/10, 04/10/10, 16/11/10 - Dopplers x3 Ireland, Poland, Scotland.
12/10/10 - 1st procedure, Poland. Symptoms worsened. No improvement.
Verdict: I urge caution + am taking a back seat watching research ATM.
13/02/12 - Started Wheldon ABX protocol.
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Postby Cece » Sat Nov 27, 2010 9:17 pm

Interrupted wrote:
Cece wrote:Most of my symptoms align with the things that seem to respond well to CCSVI venoplasty (severe fatigue, cogfog, vision clarity, weakness).


I thought that too, lol :roll: But I really hope that because you've done such solid groundwork identifying the problems before yours that they'll have everything covered and you get a whole better result. You totally deserve it! :D

You are kind, Interrupted. And you had rotten luck, I wish it had gone right for you.

With Dr. Sclafani's big announcement out of the way, I can make my small one: I have an appointment coming up at the end of January to be treated by Dr. Sclafani.

:D
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Postby Algis » Sat Nov 27, 2010 10:02 pm

I have an appointment coming up at the end of January to be treated by Dr. Sclafani.


What a feast Cece :) Will be watching this one so closely... Good luck!
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Postby burg » Sun Nov 28, 2010 9:41 am

Congratulations Cece !!!

You deserve the very best, and now You'll get it !!!
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Postby pklittle » Sun Nov 28, 2010 10:30 am

Good luck Cece!
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Postby prairiegirl » Sun Nov 28, 2010 2:07 pm

Great to hear, Cece-- wish you the very best!
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Postby L » Sun Nov 28, 2010 2:21 pm

Good luck Cece!
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Postby Trish317 » Sun Nov 28, 2010 4:56 pm

Wonderful news, Cece! You'll be in my thoughts and prayers....
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Postby newlywed4ever » Sun Nov 28, 2010 5:33 pm

Cece - I, too, have an appt with our #1 hero Jan. 28th!! What day/week will you be there?
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Postby Cece » Sun Nov 28, 2010 6:13 pm

newlywed4ever wrote:Cece - I, too, have an appt with our #1 hero Jan. 28th!! What day/week will you be there?

pm'ing you!

Algis, how do we get you to Brooklyn? I fear we don't, but if it were possible, I would head whatever effort it takes to make it happen.

Trish, L, prairiegirl, pam, burg, algis - thank you, it is exciting! When Michelle passed me Dr. Sclafani's name back on the first day of March, or perhaps the last day of February (it was late at night), I took her at her word that he was excellent. But we've had many many months now of getting to know that for ourselves. :)
Last edited by Cece on Sun Nov 28, 2010 6:41 pm, edited 1 time in total.
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Postby HappyPoet » Sun Nov 28, 2010 6:39 pm

Cece, your date with destiny awaits you -- wishing you the best of luck!
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Postby MS_HOPE » Sun Nov 28, 2010 9:38 pm

OMG, Cece, what exciting, wonderful news. I am sending you positive, healing thoughts, and hoping for the very best possible outcome for you! You've been such a helpful, knowledgeable, kind member of the TIMS family - you deserve the best.
CCSVI:  Making Sense of MS
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Postby Algis » Sun Nov 28, 2010 9:43 pm

Algis, how do we get you to Brooklyn? I fear we don't, but if it were possible, I would head whatever effort it takes to make it happen.


Thank you Cece; who knows? Taipei => New York have 3 flights a week... But the first things first: good luck!
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Postby Cece » Thu Dec 09, 2010 9:18 pm

Image[/img]
this is image #1 of 8 of them posted on this page and the next :)
Last edited by Cece on Fri Dec 10, 2010 6:47 pm, edited 1 time in total.
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Postby Cece » Thu Dec 09, 2010 9:20 pm

Image
(my azygous)
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