This Is MS Multiple Sclerosis Community: Knowledge & Support

Not sure if this gentleman's story has been posted or not.

http://www.thestar.com/article/894334-- ... on-therapy

Resolving not to undergo stenting ahead of liberation treatment but deferring the decision until one is under the knife, is like resolving not to drive home from the bar ahead of a night's drinking.

This guy must have had an extreme case of blockages. I hope his present difficulties subside and he sees some improvement over time.

What irks me is these sort of complications are lumped with angioplasty and are described as risks of liberation therapy. To me that's academically dishonest. Similarily, any reported improvement is dismissed as anecdotal evidence and attributed to a placebo effect, yet any complication (however reported) is taken as gospel.

I accept these reports and feel terrible for the people experiencing them. But for the critics, to be consistent, shouldn't they disregard these as anecdotal as well?

When I go in for my angioplasty, I am going to paste a sign on my forehead - DO NOT STENT (no matter how much I beg).

Scorpion, I don't think it was posted earlier. This is the first I've seen it.

They ballooned 50-60 times with "snapping" and "horrible cracking?!?" Is that an acceptable practice? Has anyone else had that happen?

Both my jugulars were stenoseed. When they did the angio on my right jugular (75% blockage), it had to be done twice. I did hear a cracking in my right ear during the second balooning. It is a very specific sound that you hear, not like any you have heard before. I assume it was the vein being stretched.

Thanks. My big question was if anyone else has been ballooned 50 to 60 times and if that is an acceptable practice. It seems excessive and even dangerous to me.

Jugular, I saw this and thought that same thing -- who in their right mind would expect someone to make an informed lifetime medical decision under those conditions?????????

The medical decision had been made already! He said no!

These procedures can be repeated. Once he'd gone through recovery, he could have been allowed to discuss the situation with actual professionals, do some research, and make a rational decision while fully CONCSIOUS and not under emotional and physical pressure or in pain.

I think this is a story about BAD medical practice, not MS, not CCSVI, certainly not Zamboni. That poor guy. What a nightmare. Let's hope the pain diminishes quickly, the stents turn out well after all, and his symptoms improve -- the best possible outcome.

I read this yesterday. He is so young. He wants his life. The life he truly deserves ....

This article crammed so much in ..good and bad.. and i thought, despite the 'scary' words, well put together. Lots of superficial information. Enough, I think, to inspire further research..

I was expecting to read that once he returned home things got worse but instead..

I agree with you 'Bluesky' this seems a story of 'very bad practice' , a surgical nightmare, but we have yet to hear the 'other side'..and for the sake of all, i do hope there is more to this..

Last, I wish for this young man..sigh..he is so young .. the miracles of youth and that of the human body..to overcome almost anything and to heal.