Thanks for the reply.
It certainly gives me a lot to think about.
I was given my own DVD of the scans to take home before the follow up appointment with the neurosurgeon that ordered them and I had a good look at them myself as I wanted to see if I could spot something (not that I really knew what I was looking for at the time, I was trying to see if I had Chiari Malformation).
The NS made a special point of discussing that vein with me as he knows I am the type of patient to check all my own results (as I explained to him no one is helping me).
I do trust this particular doctor (he is a well respected Harley Street doctor, which I guess doen't mean much as his colleague, a NL was awful and messed up my lumbar puncture) but then they are only ever as good as the current research, which clearly is nowhere near where it should be for CCSVI as yet - and I guess it crosses into the unclear area of being vascular surgery rather than neurosurgery, which of course is not his area.
In terms of second opinion, he was my 3rd opinion already (but my first neurosurgeon, instead of a neurologist) but should I be looking for a vascular surgeon, another neurologist/neurosurgeon or going directly to a CCSVI specialist? (Pending Lyme results, of course).
I really wish my Bupa insurance would cover a consult with Essential Health but I can't see that being possible really!
CCSVI would certainly account for pretty much most of my symptoms, and also explains some strange problems I've had with other medications (and perhaps why a trial of 75mg a day of aspirin did go someway to helping my migraines).
A lot to think about for sure. Guess I'll be playing the lottery this week
Thyroid disease, Vitamin D deficiency, hypermobility, 'ME/CFS', CCSVI (stenosis both sides and assymetric malformed valves), TMJ - No MS but many neuro symptoms.