New Globe Article

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Cece » Mon Dec 13, 2010 7:06 pm

CCSVIhusband, we were both thinking Copaxone :)

Billmeik wrote:
but yet has been unable to convince the medical community that CCSVI even exists

I think you'll note that at the last Ectrims hardly anyone was saying ccsvi doesn't exist.

We're on to the second generation arguement: ccsvi is caused by ms.

so yes the medical community, or ms experts are convinced it does exist.

A very good point. It fits too with the serious proliferation of clinics that are treating CCSVI now. Locally to me, it came to the Midwest (MN, IL) with a number of options now available, sooner than I was expecting.
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Re: New Globe Article

Postby NHE » Mon Dec 13, 2010 9:53 pm

debp wrote:This is the quote in the article I can't get over.

Dr. Klimek admits it might have been wiser had neurologists pushed to have the procedure tested properly, rather than simply oppose it. Ottawa spends a billion dollars a year on medical research and Zamboni has undergone none of it.

“Can you imagine a pharmaceutical company saying, ‘We're not sure what this pill does, we're not really sure if it hurts you or not, we're not sure how it works, why don't you buy it off us?' ” he asks. “Would any government agency say, ‘That's okay by us'?”

Um, yeah I can imagine it.

There's no reason to imagine it. Here's just one example. Have you read the prescribing information for Neurontin?

Pfizer wrote:The mechanism by which gabapentin exerts its analgesic action is unknown...

Pfizer wrote:The mechanism by which gabapentin exerts its anticonvulsant action is unknown...

Pfizer wrote:A high-affinity binding protein in animal brain tissue has been identified as an auxiliary subunit of voltage-activated calcium channels. However, functional correlates of gabapentin binding, if any, remain to be elucidated.

By the way, read the side effects for Neurontin. Pfizer is pretty sure that it can hurt you.

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Postby debp » Mon Dec 13, 2010 10:22 pm

Funny NHE, that is exactly the one I was thinking of :)

We don't know what it does or if it will help you, but if it isn't working you should try a higher dose. It is after all, safe...
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