This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Everyone:

My husband was treated by Dr. Mandato on Dec. 14th. He was ballooned in the azygous, the right jugular and in two places in the left jugular. One of the places on the left jugular was higher up. Dr. Mandato said that there seems to be some compression of the jugular by the carotid artery and the musculature in that area. He ballooned it and it looked better, there are still compression and collateral veins. When my husband turns his head a certain way, the jugular is uncompressed and the collaterals empty.

The Dr. thought that one day, if and when the treatment is proven, vascular surgeons may be interested in trying to perform surgery in that area to try to move things around and keep the jugular from being compressed.

I was just wondering if anyone has heard of this before and if it is very common.

Thanks,

TFau

The only info I've seen about arteries is on the CCSVI Tracking Site. If you scroll down to treated abnormalties you'll see that they indicate 8% of participants reported compressed artery.

CCSVI Tracking has wealth of information to explore.

All the best to you and your husband.

Sharon

i wonder if this falls into ctos. there was some talk on this site about it. i think it was someone called greymay that was looking into it as a treatment. if you haven't read about it you could also google "ctos dr. noda" and there is info. when you read this i think it might give you more insight on this whole ccsvi ctos connection. your husband would be an example of what dr. noda's treatment addresses. pressure could effect veins or arteries as your dealings with ccsvi and your doctor pointed out.

i don't want to give you false info. so don't take this as gospel but it seems dr. mehta may work with or is familiar with ctos. it might be worth a call to him and tell him about this. as i said i'm not sure on that.

i hope you keep us posted. this is very interesting.

i hope you get some answers and your husband heals. the best to you.

Dr. Sclafani's presentation in Italy back in June included a portion on this, the carotid distension, including IVUS images showing it as physiological and not a fixed stenosis. I'll see if I can find the link, there was some discussion.

http://www.thisisms.com/ftopicp-121937.html#121937

If the lower issue in that jugular was fixed, it's possible that the upper issue will resolve on its own. Did he have a follow-up doppler the next day?

Thanks everyone. I really appreciate all of this information.

Cece, he did have a follow-up ultrasound in Albany. When he turned his head one way, the upper left jugular was completely open. When he held his head normally, it was compressed - I'm not sure by how much. So, as you say, I guess it's a physiological obstruction.

We have seen some slight improvement in my husband's face colour, energy, and I think balance in the first two days. His left hand kind of uncurled since immediately after the procedure and his left foot drag doesn't seem as pronounced. Today he seems more pale and tired though.