Coffee ?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Coffee ?

Postby BELOU » Thu Dec 30, 2010 7:19 pm

I just came across a document saying at page 35 that coffee modifies blood floow in the brain, Should I stop drinking coffe :? :

Happy new year!
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Postby VeeBee » Thu Dec 30, 2010 7:59 pm

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Postby CureIous » Thu Dec 30, 2010 9:48 pm

Me likes coffee. Muches.

However, I found pre-liberation er stenting, that coffee did nothing for my fatigue whatsoever. Seemed the more I drank, the tireder I felt. Tireder I got, more coffee I drank to counteract the tireder. Sheesh, what a waste!

Then CCSVI came along and all this talk about blood vessels not getting enough blood through, and how caffeine in all it's wonderful chocolatey and brown ambrosia liquid of the gods forms was a vasoconstrictor and bad for blood flow (through areas that are deficient of course, not just any old blood flow)specifically through the brain and it didn't just ding, more like a GONG as to why medicating with coffee at the worst of my fatigue symptoms in the past, seemed like such a waste of beans, water, time and money.

Not telling anyone else what to do, but I drink as much coffee as I used to, just out of habit mind you, but on the days I don't manage to hit the brew button, I feel no different, I don't need it to wake up either.
I know after the procedure, it seemed even a teensy bit was enough to have me bouncing off the walls, vs before where it did absolutely nothing to get me going.

I love retrospect, all so clear... The very thing that helps migraine sufferers by constricting blood vessels is seemingly detrimental to those with compromised vasculature...

Anyways, not sure what to tell you, other than (at a minimum), if you haven't been treated/liberated/stented/opened or diagnosed, cutting back or eliminating caffeine may be a good idea to give yourself every fighting chance in the interim, if not just abstaining altogether and see if that helps...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video:, Virtually symptom free since, no relap
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Postby elyse_peace » Thu Dec 30, 2010 11:13 pm

i do so love that rich brown liquid. but ... i find that it amps up my continence difficulties. and as mark points out, it does little to counter fatigue. so i have reduced my consumption from approx. 1 qt. daily to approx 1 qt per year.
not as fun, not as tasty. but a bunch drier and less frantic.
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Postby Rokkit » Fri Dec 31, 2010 6:41 am

Somewhere there's an MRI video of Dr. Haacke's brain on caffein. It wasn't intended to dissuade people from caffein really, it was just an example MRI I think. But the effect on vessels in the brain was so significant and obvious, I haven't touched caffein since the day I saw it, about 3 months ago, and I drank a lot of caffein. Having said that, I don't feel one bit better. Maybe over the long haul I'll be better off, who knows.
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Re: Coffee ?

Postby cervocuit » Thu Sep 19, 2013 3:15 am
Average cerebral blood flow (CBF) maps (at MNI coordinates z = 14) of the low, moderate, and high caffeine users in the native placebo and native caffeine conditions. The difference in CBF following caffeine was greatest among the low users, followed by the moderate users, and the smallest difference was among the high users.
Native means a caffeinated state following their normal caffeine use.
Caffeine reduced CBF by an average of 27% across both caffeine states
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