Cece wrote: With CCSVI, it typically takes an obstruction in two separate veins, not just one vein. (I know of one patient here who is an exception to this, with just one occlusion; are there more?) So even with a complete ligation of one vein, the flow will go to the other and things should be ok (although I would love to see long-term follow-up on such patients.)
I can relate from my own case, with one jugular at 100% occluded, that was similar to a ligated jugular. Had my other vein been wide open, instead of 80% occluded, maybe I would not have developed MS?
In my case they found a stenoes only in my RIJV and they dilated it. However, it started to collapse a few weeks afetr the operation. Now, it went back to the state where it was originally. I wanted to find out if there ican bee seen any abnormailities in the other two veins, but so far no anwser from dr Sclafani. Only dr Sinan responded to me; but -i am not sure if he based his anwser on the images or this is a general thing what he would do. So now, I am pretty stuck with this. I also noticed deterioration in my condition; however, it is hard to say with ppms that it was more or not than usual.
WinniPegGirl, I agree with what others have said, especially Dr. Cumming, that you made your best decision with what was known. For other patients those big balloons have worked, haven't they? It is not across the board collapse of veins. So it could have worked for you too but didn't. I like too what he said about letting your veins heal and that maybe a solution can be found
Please correct me if I am wrong, but my understanding was that sooner or later everyone's dilated veins will collapse (elastic recoil), the problem is when scarring builds up on the vein walls and it adds up to the elastic recoil and makse stenoses worse, even a full occlusion as it happened with Winni. Is that right? Could the vein collapse due to an elastic recoil without scarring to a narrower position than it was originally; so the stenoses would be greater? It is interesting that my vascular surgeon told me that with their technique (using a small balloon) they expect that angioplasty should be repeated couple times as they expected restenosis. - By the way, as far as I remember originally, dr Zamboni used balloons smaller than 10mm. He also reported that circa 50% of patients get restenoses. Has he changed his technique since? - To me elastic recoil seemed as a natural thing that everyone expected beforehand. If that is true, then we should really differenciate between elatic recoil and scarring when we talk about restenoses.