Please, Help Prof. Zamboni official trials

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Please, Help Prof. Zamboni official trials

Postby NHE » Mon Apr 04, 2011 8:38 am

secondopinion wrote:I am not against innovative and aggressive new treatments, but in case of MS I would better think for aggressive immunosupressive/immunomodulatory treatment, like rituximab (which has been shown to be effective even for progressive disease, in subsets of younger people)...

Rituxan is no walk in the park either...
  • RITUXAN can cause serious side effects that can lead to death, including: infusion reactions, tumor lysis syndrome (TLS; kidney failure due to fast breakdown of cancer cells), severe skin and mouth reactions, and progressive multifocal leukoencephalopathy (PML; a rare, serious brain infection).
  • RITUXAN has also been associated with serious and life-threatening side effects, including: the return of active hepatitis B virus infection with sudden and serious liver problems including liver failure, and death, other serious infections that can lead to death, heart problems, kidney problems, and stomach and serious bowel problems including blockage and tears in the bowel that can sometimes lead to death.
  • The most common side effects of RITUXAN seen in patients with non-Hodgkin’s lymphoma were infusion reactions, fever, chills, low white blood cells, infections, body aches, and tiredness. The most common side effects of RITUXAN in patients with chronic lymphocytic leukemia were infusion reactions and low white blood cells. The most common side effects of RITUXAN observed in patients with RA were hypertension, nausea, upper respiratory tract infection, arthralgia, pruritus, and pyrexia. Before starting treatment with RITUXAN it is important to talk to your doctor about your medical history.

Last edited by NHE on Mon Apr 04, 2011 9:27 pm, edited 1 time in total.
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Postby 1eye » Mon Apr 04, 2011 9:17 am

So one might say that rather than being prevented from having veins treated, like other more ordinary human beings, it might be better to prevent people with CCSVI from taking 'MS' drug treatments.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby speedbird » Wed Apr 06, 2011 6:06 pm

Donated. Although I have little chance of raising the money needed for treatment I can at least support some research which could change politicians minds in the UK. (I would not wait for the neuro establishment to say sorry. :wink: )
Progressive MS dx. 12/06. Currently on CAP for CPN: Wheldon protocol. LDN 4.5ml.
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Postby orion98665 » Fri Apr 08, 2011 4:25 pm

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Postby orion98665 » Thu Apr 14, 2011 12:57 am

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