NHS Trials for CCSVI in the UK Rejected

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hard numbers

Postby MarkW » Sat Jan 29, 2011 9:33 am

Dr Hubbard has data on 2000 patients. We have a safe procedure which helps a significant proportion of pwMS. I would love to have data on 5000 but 2000 is a great start.

I am starting to lobby.

Mark Walker - Oxfordshire, England. Retired Pharmacist. 12 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
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Postby Cece » Sat Jan 29, 2011 9:54 am

Mark, thank you for any lobbying that you do, I think you are right that it needs doing.

I do not think though that Dr. Hubbard has data on 2000 patients. Where did you get that number? He has released data on 100 patients. His newly-approved patient-centric IRB registry is not for patients treated in the past but for patients treated in upcoming months. He needs to collect information at the time of procedure and at 1 month and 6 months afterwards and patients treated in the past cannot no longer fill out a 1 month checkup if it is gone by.
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