NHS Trials for CCSVI in the UK Rejected

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hard numbers

Postby MarkW » Sat Jan 29, 2011 9:33 am

Dr Hubbard has data on 2000 patients. We have a safe procedure which helps a significant proportion of pwMS. I would love to have data on 5000 but 2000 is a great start.

I am starting to lobby.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
MarkW
Family Elder
 
Posts: 1142
Joined: Thu Oct 19, 2006 3:00 pm
Location: Oxfordshire, England

Advertisement

Postby Cece » Sat Jan 29, 2011 9:54 am

Mark, thank you for any lobbying that you do, I think you are right that it needs doing.

I do not think though that Dr. Hubbard has data on 2000 patients. Where did you get that number? He has released data on 100 patients. His newly-approved patient-centric IRB registry is not for patients treated in the past but for patients treated in upcoming months. He needs to collect information at the time of procedure and at 1 month and 6 months afterwards and patients treated in the past cannot no longer fill out a 1 month checkup if it is gone by.
Cece
Family Elder
 
Posts: 8989
Joined: Mon Jan 04, 2010 4:00 pm

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users